Hemophilia Act

Summary

Hemophilia Act - Provides that any individual suffering from hemophilia may file a claim for benefits under this act with the Secretary of Health, Education and Welfare in such form and containing such information as the Secretary may reasonably require. States that benefits under this Act shall be paid to, or on behalf of a, claimant, in an amount equal to 100 percent of the actual cost of providing blood, blood products, and services associated with the treatment of hemophilia, less: (1) amounts payable by third parties (including government agencies), and (2) amounts determined by the Secretary (in accordance with this Act) to be payable by the individual suffering from hemophilia. Authorizes to be appropriated for the fiscal years beginning July 1, 1973, and ending June 30, 1976, such sums as may be necessary to carry out the purposes of this Act. Directs the Secretary to provide for the establishment of no less than fifteen new centers for the diagnosis and treatment of individuals suffering from hemophilia. Authorizes to be appropriated to carry out the purposes of this section $5,000,000 for the fiscal year ending June 30, 1974, $10,000,000 for the fiscal year ending June 30, 1975, and $15,000,000 for the fiscal year ending June 30, 1976. Provides that the Secretary shall establish a program within the Public Health Service to provide for diagnosis, treatment, and counseling of individuals suffering from hemophilia. States that such program shall be made available through the facilities of the Public Health Service to any individual requesting diagnosis, treatment, or counseling for hemophilia. Permits the Secretary to make grants to public and nonprofit private entities, and to enter into contracts with public and private entities and individuals to establish blood fractionation centers, for the purpose of fractionating and making available for distribution blood and blood products, in accordance with regulations prescribed by the Secretary to hemophilia treatment and diagnostic centers. Authorizes to be appropriated $5,000,000 for the fiscal year ending June 30, 1974, $10,000,000 for the fiscal year ending June 30, 1975, and $15,000,000 for the fiscal year ending June 30, 1976 for this purpose. Establishes in the National Institutes of Health a National Hemophilia Advisory Board composed of twenty members, the purpose of which shall be to: (1) establish guidelines for the diagnosis and treatment of persons suffering from hemophilia; and (2) submit a report to the President for transmittal to the Congress not later than January 31 of each year on the scope of activities conducted under this part. Requires each recipient of a grant or contract under this part to keep such records as the Secretary may prescribe, including records which fully disclose the amount and disposition by such recipient of the proceeds of such grant or contract, the total cost of the project or undertaking in connection with which such grant or contract is made or used, and the amount of that portion of the cost of the project or undertaking supplied by other sources, and such records as will facilitate an effective audit.

This text is taken from the official record. PoliticalRepo does not editorialize.

Timeline

1. 14 November 1973

   Introduced

   Referred to House Committee on Interstate and Foreign Commerce.

   Source: IntroReferral

2. 14 November 1973

   Introduced

   Introduced in House

   Source: IntroReferral

3. 14 November 1973

   Introduced

   Introduced in House

   Source: IntroReferral

Votes

No vote records are attached yet.

Versions

No version snapshots stored. Document URLs remain at the source.

Documents

1 official file

• Introduced in House

  summary · EN · 14 November 1973

  Open at official source

Sponsors

• Rep. Carey, Hugh L. [D-NY-15] · D · Sponsor
• · hsif00 · Standing

Related records

• related to → Hemophilia Act