Genetic Information Privacy Act of 2019

Summary

Genetic Information Privacy Act of 2019 This bill prohibits commercial genetic testing services from disclosing consumers' personally identifiable information to third parties without the consumer's express consent. In the case of the disclosure of personally identifiable information for medical research, a genetic testing service must follow the federal rules for obtaining informed consent in the context of research involving human subjects. Further, genetic testing services must provide consumers with the option to consent to disclose a consumer's genetic information but not to disclose other personally identifiable information. A genetic testing service may not condition services on obtaining consent to disclose such information. The Federal Trade Commission (FTC) must promulgate regulations establishing how genetic testing services are required to secure such personally identifiable information against unauthorized access. The bill grants the FTC and state attorneys general powers to enforce compliance with the requirements of this bill.

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Timeline

1. 9 April 2019

   Introduced

   Referred to the House Committee on Energy and Commerce.

   Source: IntroReferral

2. 9 April 2019

   Introduced

   Introduced in House

   Source: IntroReferral

3. 9 April 2019

   Introduced

   Introduced in House

   Source: IntroReferral

4. 10 April 2019

   Referred

   Referred to the Subcommittee on Consumer Protection and Commerce.

   Source: Committee

Votes

No vote records are attached yet.

Versions

• Introduced in House · 9 April 2019 · Download file

Documents

3 official files

• Introduced in House (text)

  Introduced in House · EN · 9 April 2019

  ViewDownloadOpen at official source

• Introduced in House (PDF)

  Introduced in House · EN · 9 April 2019

  ViewDownloadOpen at official source

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• Introduced in House

  summary · EN · 9 April 2019

  Open at official source

  Leesvertaling

  Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.

  Vertaal naarNL · DutchDE · GermanFR · FrenchES · SpanishIT · ItalianPL · PolishPT · PortugueseSV · SwedishDA · DanishFI · FinnishEL · GreekCS · CzechHU · HungarianRO · RomanianBG · BulgarianHR · CroatianSK · SlovakSL · SlovenianLT · LithuanianLV · LatvianET · EstonianGA · IrishMT · Maltese

  Vertaal document

  Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.

Sponsors

• Rep. Rush, Bobby L. [D-IL-1] · D · Sponsor
• Rep. Jackson Lee, Sheila [D-TX-18] · D · Cosponsor
• Rep. Titus, Dina [D-NV-1] · D · Cosponsor
• Rep. Case, Ed [D-HI-1] · D · Cosponsor
• Rep. Carson, André [D-IN-7] · D · Cosponsor
• Rep. Soto, Darren [D-FL-9] · D · Cosponsor
• Del. Norton, Eleanor Holmes [D-DC-At Large] · D · Cosponsor
• Rep. Hastings, Alcee L. [D-FL-20] · D · Cosponsor
• Michael San Nicolas · D · Cosponsor
• Rep. Davis, Danny K. [D-IL-7] · D · Cosponsor
• Rep. Thompson, Bennie G. [D-MS-2] · D · Cosponsor
• · hsif00 · Standing

Related records

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