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United States · Bill · HR

H.R. 225 (113th)

National Pediatric Research Network Act of 2013

referredUnited States· United States Congress· EN

Introduced

14 January 2013

Last action

7 February 2013 · Introduced

Status

Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

Sponsors

Rep. Capps, Lois [D-CA-24], Rep. McMorris Rodgers, Cathy [R-WA-5], Rep. DeGette, Diana [D-CO-1], Rep. Harper, Gregg [R-MS-3], Rep. Matsui, Doris O. [D-CA-7], Rep. King, Peter T. [R-NY-2], Del. Christensen, Donna M. [D-VI-At Large], Rep. Schakowsky, Janice D. [D-IL-9], Rep. Waxman, Henry A. [D-CA-33], Rep. Pallone, Frank [D-NJ-6], Rep. Castor, Kathy [D-FL-14]

Subjects

Healthcare

Source updated

21 April 2025

Healthcare

Summary

National Pediatric Research Network Act of 2013 - Amends the Public Health Service Act to authorize the Director of the National Institutes of Health (NIH), in carrying out the Pediatric Research Initiative, to act through the Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development to provide for the establishment of a National Pediatric Research Network. Authorizes the Director of the Institute to award funding to public or private nonprofit entities for: (1) planning, establishing, or strengthening pediatric research consortia; and (2) providing basic operating support for such consortia, including to meet unmet needs for pediatric research through basic, clinical, behavioral, or translational research and the training of researchers in pediatric research techniques. Authorizes the Director of NIH to make awards for not more than 20 pediatric research consortia, which must be formed from a collaboration of cooperating institutions, coordinated by a lead institution, agree to disseminate scientific findings, and meet requirements prescribed by the Director of NIH. Allows such support to be for a period of five years, with additional extensions at the discretion of the Director of NIH. Requires the Director of NIH to provide for the coordination of activities among the consortia and to require the periodic preparation and submission of reports on their activities. Requires each pediatric research consortium receiving an award to assist the Centers for Disease Control and Prevention (CDC) in the establishment or expansion of patient registries and other surveillance systems as appropriate and upon request by the CDC. Requires the Director of NIH to ensure that an appropriate number of such awards are awarded to consortia that agree to: (1) focus primarily on pediatric rare diseases or conditions; and (2) conduct or coordinate multi-site clinical trials of therapies for, or approaches to, the prevention, diagnosis, or treatment of pediatric rare diseases or conditions. Requires the Director of NIH to establish a data coordinating center to: (1) distribute such findings; (2) provide assistance in the design and conduct of collaborative research projects and the management, analysis, and storage of data associated with such projects; and (3) organize and conduct multi-site monitoring activities. Requires the Director of NIH to: (1) require the data coordinating center to provide regular reports to the Director of NIH and the Commissioner of Food and Drugs (FDA) on research conducted by consortia, including information on enrollment in clinical trials and the allocation of resources with respect to such research; and (2) incorporate such information into NIH's biennial reports.

This text is taken from the official record. PoliticalRepo does not editorialize.

Timeline

  1. 14 January 2013

    Introduced

    Referred to the House Committee on Energy and Commerce.

    Source: IntroReferral

  2. 14 January 2013

    Introduced

    Introduced in House

    Source: IntroReferral

  3. 14 January 2013

    Introduced

    Introduced in House

    Source: IntroReferral

  4. 18 January 2013

    Referred

    Referred to the Subcommittee on Health.

    Source: Committee

  5. 4 February 2013

    Passed

    Motion to reconsider laid on the table Agreed to without objection.

    Source: Floor

  6. 4 February 2013

    Vote

    At the conclusion of debate, the Yeas and Nays were demanded and ordered. Pursuant to the provisions of clause 8, rule XX, the Chair announced that further proceedings on the motion would be postponed.

    Source: Floor

  7. 4 February 2013

    Floor

    DEBATE - The House proceeded with forty minutes of debate on H.R. 225.

    Source: Floor

  8. 4 February 2013

    Floor

    Mr. Pitts moved to suspend the rules and pass the bill.

    Source: Floor

  9. 4 February 2013

    Calendars

    Placed on the Union Calendar, Calendar No. 2.

    Source: Calendars

  10. 4 February 2013

    Reported

    Reported by the Committee on Energy and Commerce. H. Rept. 113-4.

    Source: Committee

  11. 4 February 2013

    Reported

    Reported by the Committee on Energy and Commerce. H. Rept. 113-4.

    Source: Committee

  12. 4 February 2013

    Vote

    On motion to suspend the rules and pass the bill Agreed to by the Yeas and Nays: (2/3 required): 375 - 27 (Roll no. 31). (text: CR H322)

    Source: Floor

  13. 4 February 2013

    Vote

    Passed/agreed to in House: On motion to suspend the rules and pass the bill Agreed to by the Yeas and Nays: (2/3 required): 375 - 27 (Roll no. 31).(text: CR H322)

    Source: Floor

  14. 4 February 2013

    Floor

    Considered under suspension of the rules. (consideration: CR H322-325)

    Source: Floor

  15. 7 February 2013

    Introduced

    Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

    Source: IntroReferral

Votes

No vote records are attached yet.

Versions

Documents

10 official files

Referred in Senate (text)

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  • Referred in Senate (text)

    Referred in Senate · EN · 7 February 2013

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  • Referred in Senate (PDF)

    Referred in Senate · EN · 7 February 2013

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  • Reported in House (text)

    Reported in House · EN · 4 February 2013

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  • Reported in House (PDF)

    Reported in House · EN · 4 February 2013

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  • Engrossed in House (text)

    Engrossed in House · EN · 4 February 2013

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  • Engrossed in House (PDF)

    Engrossed in House · EN · 4 February 2013

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  • Passed House without amendment

    summary · EN · 4 February 2013

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  • Introduced in House (text)

    Introduced in House · EN · 14 January 2013

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  • Introduced in House (PDF)

    Introduced in House · EN · 14 January 2013

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  • Introduced in House

    summary · EN · 14 January 2013

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Sponsors

Related records

Sources

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