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United States · Bill · HR

H.R. 4228 (116th)

RARE Act of 2019

referredUnited States· United States Congress· EN

Introduced

6 September 2019

Last action

9 September 2019 · Introduced

Status

Referred to the Subcommittee on Health.

Sponsors

Rep. Carson, André [D-IN-7], Rep. Hudson, Richard [R-NC-8], Rep. Brownley, Julia [D-CA-26], Rep. Bucshon, Larry [R-IN-8], Rep. DeFazio, Peter A. [D-OR-4], Rep. Deutch, Theodore E. [D-FL-22], Rep. Fitzpatrick, Brian K. [R-PA-1], Rep. Jackson Lee, Sheila [D-TX-18], Sen. Luján, Ben Ray [D-NM], Rep. Maloney, Carolyn B. [D-NY-12], Rep. Moore, Gwen [D-WI-4], Rep. Murphy, Stephanie N. [D-FL-7], Del. Norton, Eleanor Holmes [D-DC-At Large], Rep. Raskin, Jamie [D-MD-8], Rep. Rouda, Harley [D-CA-48], Rep. Suozzi, Thomas R. [D-NY-3], Rep. Walorski, Jackie [R-IN-2], Rep. Visclosky, Peter J. [D-IN-1], Rep. Beatty, Joyce [D-OH-3], Rep. Johnson, Eddie Bernice [D-TX-30], Rep. Brooks, Susan W. [R-IN-5], Rep. Pocan, Mark [D-WI-2], Rep. King, Peter T. [R-NY-2], Sen. Blunt Rochester, Lisa [D-DE], Rep. Axne, Cynthia [D-IA-3], Rep. Maloney, Sean Patrick [D-NY-18], Rep. Correa, J. Luis [D-CA-46], Rep. Harder, Josh [D-CA-9], Sen. Welch, Peter [D-VT], Rep. Rutherford, John H. [R-FL-5], Rep. Soto, Darren [D-FL-9], Rep. Khanna, Ro [D-CA-17], Rep. Payne, Donald M., Jr. [D-NJ-10], Rep. Ruppersberger, C. A. Dutch [D-MD-2], Rep. Rush, Bobby L. [D-IL-1], Rep. Joyce, David P. [R-OH-14], Rep. Kennedy, Joseph P., III [D-MA-4], Rep. Doggett, Lloyd [D-TX-37], Rep. Hastings, Alcee L. [D-FL-20], Rep. Schakowsky, Janice D. [D-IL-9], Rep. Meeks, Gregory W. [D-NY-5], Rep. Kuster, Ann M. [D-NH-2], Rep. McBath, Lucy [D-GA-6], Rep. Grijalva, Raúl M. [D-AZ-7], Rep. Kelly, Robin L. [D-IL-2], Rep. Lawson, Al, Jr. [D-FL-5], Rep. Matsui, Doris O. [D-CA-7], Rep. Lewis, John [D-GA-5]

Subjects

Healthcare, Transport, Education

Source updated

3 January 2025

Healthcare · Transport · Education

Official sourceDownload fileView documentsShare

Summary

Rare disease Advancement, surveillance Research, and Education Act of 2019 or the RARE Act of 2019 The bill reauthorizes through FY2024 the National Institutes of Health Rare Disease Regional Centers of Excellence and expands activities to facilitate research and increase awareness of rare diseases and conditions. (Rare diseases and conditions are those with a prevalence of fewer than 200,000 individuals in the United States.) The Centers for Disease Control and Prevention (CDC) may expand infrastructure and activities to track the epidemiology of up to four rare diseases and conditions and incorporate this information into a National Rare Disease or Condition Surveillance System. The Agency for Healthcare Research and Quality must expand its activities to increase health care providers' awareness of rare diseases and conditions. The National Academies of Sciences, Engineering, and Medicine, or another appropriate entity, must update the 2010 report Rare Diseases and Orphan Products: Accelerating Research and Development.

This text is taken from the official record. PoliticalRepo does not editorialize.

Timeline

  1. 6 September 2019

    Introduced

    Referred to the House Committee on Energy and Commerce.

    Source: IntroReferral

  2. 6 September 2019

    Introduced

    Introduced in House

    Source: IntroReferral

  3. 6 September 2019

    Introduced

    Introduced in House

    Source: IntroReferral

  4. 9 September 2019

    Referred

    Referred to the Subcommittee on Health.

    Source: Committee

  5. 9 September 2019

    Introduced

    Sponsor introductory remarks on measure. (CR E1107)

    Source: IntroReferral

Votes

No vote records are attached yet.

Versions

Documents

3 official files

Introduced in House (text)

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  • Introduced in House (text)

    Introduced in House · EN · 6 September 2019

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  • Introduced in House (PDF)

    Introduced in House · EN · 6 September 2019

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  • Introduced in House

    summary · EN · 6 September 2019

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Sponsors

Showing 48 of 78 sponsors and actors.

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Sources

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