Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2014

Summary

Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2014 - Amends the Public Health Service Act to require the Secretary of Health and Human Services (HHS) to establish and implement a hereditary hemorrhagic telangiectasia (HHT, a vascular genetic bleeding disorder that causes abnormalities of the blood vessels) initiative to assist in coordinating activities to improve early detection, screening, and treatment of people who suffer from HHT, focusing on advancing research on the causes, diagnosis, and treatment of HHT and increasing physician and public awareness of HHT. Directs the Secretary to establish the HHT Coordinating Committee to develop and coordinate implementation of a plan to advance research and understanding of HHT, including by: (1) conducting or supporting research across relevant National Institutes of Health (NIH) institutes, and (2) conducting evaluations and making recommendations regarding the prioritization and award of NIH research grants relating to HHT. Requires the Director of the Centers for Disease Control and Prevention (CDC) to carry out activities with respect to HHT, including conducting population screening and establishing an HHT resource center to provide comprehensive education on and disseminate information about HHT to health professionals, patients, industry, and the public. Requires the Administrator of the Centers for Medicare & Medicaid Services (CMS) to award grants for research, including an analysis of health care expenditures associated with untreated HHT and costs associated with preventable medical events among Medicare beneficiaries with HHT.

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Timeline

1. 7 May 2014

   Introduced

   Referred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and Means, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.

   Source: IntroReferral

2. 7 May 2014

   Introduced

   Introduced in House

   Source: IntroReferral

3. 7 May 2014

   Introduced

   Introduced in House

   Source: IntroReferral

4. 9 May 2014

   Referred

   Referred to the Subcommittee on Health.

   Source: Committee

Votes

No vote records are attached yet.

Versions

• Introduced in House · 7 May 2014 · Download file

Documents

3 official files

• Introduced in House (text)

  Introduced in House · EN · 7 May 2014

  ViewDownloadOpen at official source

• Introduced in House (PDF)

  Introduced in House · EN · 7 May 2014

  ViewDownloadOpen at official source

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• Introduced in House

  summary · EN · 7 May 2014

  Open at official source

  Leesvertaling

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  Vertaal naarNL · DutchDE · GermanFR · FrenchES · SpanishIT · ItalianPL · PolishPT · PortugueseSV · SwedishDA · DanishFI · FinnishEL · GreekCS · CzechHU · HungarianRO · RomanianBG · BulgarianHR · CroatianSK · SlovakSL · SlovenianLT · LithuanianLV · LatvianET · EstonianGA · IrishMT · Maltese

  Vertaal document

  Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.

Sponsors

• Rep. Gerlach, Jim [R-PA-6] · R · Sponsor
• Rep. Himes, James A. [D-CT-4] · D · Sponsor
• Del. Norton, Eleanor Holmes [D-DC-At Large] · D · Cosponsor
• Rep. Miller, Candice S. [R-MI-10] · R · Cosponsor
• Rep. DeLauro, Rosa L. [D-CT-3] · D · Cosponsor
• Rep. Connolly, Gerald E. [D-VA-11] · D · Cosponsor
• Rep. Moran, James P. [D-VA-8] · D · Cosponsor
• Rep. Smith, Christopher H. [R-NJ-4] · R · Cosponsor
• Rep. Shea-Porter, Carol [D-NH-1] · D · Cosponsor
• Rep. Lofgren, Zoe [D-CA-18] · D · Cosponsor
• Rep. Royce, Edward R. [R-CA-39] · R · Cosponsor
• Rep. Coffman, Mike [R-CO-6] · R · Cosponsor
• · hsif00 · Standing
• · hswm00 · Standing

Related records

• related to ← Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2013