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United States · Bill · HR

H.R. 534 (116th)

Aidan’s Law

referredUnited States· United States Congress· EN

Introduced

14 January 2019

Last action

Status

Referred to the Subcommittee on Health.

Sponsors

Subjects

Discovery layer

Source updated

7 April 2025

Summary

Aidan's Law This bill authorizes newborn screenings for adrenoleukodystrophy (also known as ALD), which is a hereditary condition that damages the insulating membrane of nerve cells in the brain. The bill authorizes hospitals, child care centers, clinics, and similar institutions to test newborns for ALD in accordance with state protocols; such protocols must be approved by the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children. The bill also reauthorizes for FY2020-FY2023 the heritable disorders screening program for newborns and children that is administered by the Health Resources and Services Administration.

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Documents

3 official files

Introduced in House (text)

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Sources

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