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United States · Bill · HR

H.R. 5453 (115th)

Aidan's Law

referredUnited States· United States Congress· EN

Introduced

10 April 2018

Last action

Status

Referred to the House Committee on Energy and Commerce.

Sponsors

Subjects

Discovery layer

Source updated

11 August 2025

Summary

Aidan's Law This bill authorizes newborn screenings for adrenoleukodystrophy (also known as ALD), which is a hereditary condition that damages the insulating membrane of nerve cells in the brain. The bill authorizes hospitals, child care centers, clinics, and similar institutions to test newborns for ALD in accordance with state protocols; such protocols must be approved by the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children. The bill also reauthorizes through FY2022 the heritable disorders screening program for newborns and children that is administered by the Health Resources and Services Administration.

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Documents

3 official files

Introduced in House (text)

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