National Pediatric Research Network Act of 2012

Summary

National Pediatric Research Network Act of 2012 - Amends the Public Health Service Act to authorize the Director of the National Institutes of Health (NIH), in carrying out the Pediatric Research Initiative, to act through the Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development and in collaboration with other appropriate national research institutes and national centers that carry out activities involving pediatric research to provide for the establishment of a National Pediatric Research Network. Authorizes the Director of the Institute to award cooperative agreements and grants to public or private nonprofit entities for: (1) planning, establishing, or strengthening pediatric research consortia; and (2) providing basic operating support for such consortia, including for pediatric research needs and training. Authorizes the Director to make awards for not more than 20 pediatric research consortia. Requires the Director to provide for the coordination of activities among the consortia and to require the periodic preparation and submission of reports on their activities. Requires the Director of NIH to ensure that an appropriate number of such awards are awarded to consortia that agree to: (1) focus primarily on pediatric rare diseases or conditions; (2) conduct or coordinate multi-site clinical trials of therapies for, or approaches to, the prevention, diagnosis, or treatment of pediatric rare diseases or conditions; and (3) disseminate trial findings. Requires the Director of NIH to establish a data coordinating center to: (1) distribute such findings; (2) provide assistance in the design and conduct of collaborative research projects and the management, analysis, and storage of data associated with such projects; (3) organize and conduct multi-site monitoring activities; (4) provide assistance to the Centers for Disease Control and Prevention (CDC) in the establishment of patient registries; and (5) report regularly on consortia research.

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Timeline

1. 19 July 2012

   Introduced

   Referred to the House Committee on Energy and Commerce.

   Source: IntroReferral

2. 19 July 2012

   Introduced

   Introduced in House

   Source: IntroReferral

3. 19 July 2012

   Introduced

   Introduced in House

   Source: IntroReferral

4. 20 July 2012

   Referred

   Referred to the Subcommittee on Health.

   Source: Committee

5. 11 September 2012

   Committee

   Forwarded by Subcommittee to Full Committee .

   Source: Committee

6. 11 September 2012

   Committee

   Subcommittee Hearings Held.

   Source: Committee

7. 19 September 2012

   Passed

   Motion to reconsider laid on the table Agreed to without objection.

   Source: Floor

8. 19 September 2012

   Passed

   On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote. (text: CR H6138)

   Source: Floor

9. 19 September 2012

   Passed

   Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote.(text: CR H6138)

   Source: Floor

10. 19 September 2012

    Floor

    DEBATE - The House proceeded with forty minutes of debate on H.R. 6163.

    Source: Floor

11. 19 September 2012

    Floor

    Considered under suspension of the rules. (consideration: CR H6138-61340)

    Source: Floor

12. 19 September 2012

    Floor

    Mr. Upton moved to suspend the rules and pass the bill, as amended.

    Source: Floor

13. 20 September 2012

    Introduced

    Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

    Source: IntroReferral

Votes

No vote records are attached yet.

Versions

• Referred in Senate · 20 September 2012 · Official file
• Engrossed in House · 19 September 2012 · Official file
• Introduced in House · 19 July 2012 · Official file

Documents

8 official files

• Referred in Senate (text)

  Referred in Senate · EN · 20 September 2012

  ViewDownloadOpen at official source

• Referred in Senate (PDF)

  Referred in Senate · EN · 20 September 2012

  ViewDownloadOpen at official source

• Engrossed in House (text)

  Engrossed in House · EN · 19 September 2012

  ViewDownloadOpen at official source

• Engrossed in House (PDF)

  Engrossed in House · EN · 19 September 2012

  ViewDownloadOpen at official source

• Passed House amended

  summary · EN · 19 September 2012

  Open at official source

• Introduced in House (text)

  Introduced in House · EN · 19 July 2012

  ViewDownloadOpen at official source

• Introduced in House (PDF)

  Introduced in House · EN · 19 July 2012

  ViewDownloadOpen at official source

• Introduced in House

  summary · EN · 19 July 2012

  Open at official source

Sponsors

• Cathy Rodgers · R · Sponsor
• Rep. Capps, Lois [D-CA-24] · D · Sponsor
• Gregg Harper · R · Sponsor
• Rep. DeGette, Diana [D-CO-1] · D · Sponsor
• PETER KING · R · Sponsor
• Rep. Stearns, Cliff [R-FL-6] · R · Cosponsor
• Rep. McCaul, Michael T. [R-TX-10] · R · Cosponsor
• Rep. Bachus, Spencer [R-AL-6] · R · Cosponsor
• Rep. Castor, Kathy [D-FL-14] · D · Cosponsor
• Rep. Schwartz, Allyson Y. [D-PA-13] · D · Cosponsor
• Rep. Matsui, Doris O. [D-CA-7] · D · Cosponsor
• · sshr00 · Standing
• · hsif00 · Standing

Related records

• related to ← National Pediatric Research Network Act of 2012