Hemophilia Act

Summary

Hemophilia Act - Provides that any individual suffering from hemophilia may file a claim for benefits under this Act with the Secretary of Health, Education, and Welfare in such form and containing such information as he may reasonably require. States that benefits under this Act shall be paid to, or on behalf of a claimant, in an amount equal to 100 percent of the actual cost of providing blood, blood products, and services associated with the treatment of hemophilia, less: (1) amounts payable by third parties (including governmental agencies); and (2) amounts determined by the Secretary (in accordance with this Act) to be payable by the individual suffering from hemophilia. Authorizes to be appropriated for fiscal years 1976, 1977 and 1978, such sums as may be necessary to carry out the purposes of these provisions. Directs the Secretary to provide for the establishment of no less than fifteen new centers for the diagnosis and treatment of individuals suffering from hemophilia. Authorizes to be appropriated to carry out such purposes: $5,000,000 for fiscal year 1975, $10,000,000 for fiscal year 1976, and $15,000,000 for fiscal year 1977. Provides that the Secretary shall establish a program within the Public Health Service to provide for diagnosis, treatment, and counseling of individuals suffering from hemophilia. States that such program shall be made available through the facilities of the Public Health Service to any individual requesting diagnosis, treatment, or counseling for hemophilia. Permits the Secretary to make grants to public and nonprofit private entities, and to enter into contracts with such entities and individuals, to establish blood fractionation centers for the purpose of fractionating and making available for distribution blood and blood products, in accordance with regulations prescribed by the Secretary to hemophilia treatment and diagnostic centers. Authorizes to be appropriated $5,000,000 for fiscal year 1975, $10,000,000 for fiscal year 1976, and $15,000,000 for fiscal year 1977 for this purpose. Establishes in the National Institutes of Health a National Hemophilia Advisory Board to be composed of twenty members. States that it shall be the function of the Board to: (1) establish guidelines for the diagnosis and treatment of persons suffering from hemophilia; and (2) submit a report to the President for transmittal to the Congress not later than January 31 of each year on the scope of actions conducted under this Act.

This text is taken from the official record. PoliticalRepo does not editorialize.

Timeline

No timeline events have been ingested for this record yet.

Votes

No vote records are attached yet.

Versions

No version snapshots stored. Document URLs remain at the source.

Documents

1 official file

• Introduced in House

  summary · EN · 14 January 1975

  Open at official source

Sponsors

No sponsors or actors listed by the source.

Related records

No cross-record relationships stored yet.