New Era of Preventing End-Stage Kidney Disease Act

Summary

New Era of Preventing End-Stage Kidney Disease Act This bill addresses rare kidney diseases through research, training for health professionals, and other means. It also modifies requirements for Medicare drug plan formularies that include drugs for rare diseases or conditions. The Department of Health and Human Services (HHS) must convene a conference focused on diagnosis and treatment of rare kidney diseases; study risk factors, access to care (including to genetic and genomic testing), and other matters related to rare kidney diseases; and establish grants for supporting kidney disease education and referrals in communities of color. HHS may award grants to educate and train health professionals about kidney disease and nephrology. Additionally, health professional schools that receive certain HHS funding for educating underrepresented minority individuals must support postgraduate nephrology training. The National Institutes of Health (NIH) must report on diversity in its kidney disease research. The NIH may also (1) support research on rare kidney diseases that, among other requirements, includes persons of color in study populations; and (2) establish regional centers of excellence for rare kidney diseases. The Centers for Medicare & Medicaid Services must evaluate methods for (1) treating rare kidney diseases, with a focus on delaying dialysis and transplant; and (2) raising awareness about rare kidney diseases, including in communities of color. Furthermore, if a Medicare drug plan formulary includes a drug to treat a rare disease or condition, at least two members of the committee that develops or reviews the formulary must have expertise in the field of medicine related to that drug.

This text is taken from the official record. PoliticalRepo does not editorialize.

Timeline

1. 14 April 2022

   Introduced

   Referred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and Means, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.

   Source: IntroReferral

2. 14 April 2022

   Introduced

   Introduced in House

   Source: IntroReferral

3. 14 April 2022

   Introduced

   Introduced in House

   Source: IntroReferral

4. 15 April 2022

   Referred

   Referred to the Subcommittee on Health.

   Source: Committee

Votes

No vote records are attached yet.

Versions

• Introduced in House · 14 April 2022 · Download file

Documents

3 official files

• Introduced in House (text)

  Introduced in House · EN · 14 April 2022

  ViewDownloadOpen at official source

• Introduced in House (PDF)

  Introduced in House · EN · 14 April 2022

  ViewDownloadOpen at official source

  Leesvertaling

  Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.

  Vertaal naarNL · DutchDE · GermanFR · FrenchES · SpanishIT · ItalianPL · PolishPT · PortugueseSV · SwedishDA · DanishFI · FinnishEL · GreekCS · CzechHU · HungarianRO · RomanianBG · BulgarianHR · CroatianSK · SlovakSL · SlovenianLT · LithuanianLV · LatvianET · EstonianGA · IrishMT · Maltese

  Vertaal document

  Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.

• Introduced in House

  summary · EN · 14 April 2022

  Open at official source

  Leesvertaling

  Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.

  Vertaal naarNL · DutchDE · GermanFR · FrenchES · SpanishIT · ItalianPL · PolishPT · PortugueseSV · SwedishDA · DanishFI · FinnishEL · GreekCS · CzechHU · HungarianRO · RomanianBG · BulgarianHR · CroatianSK · SlovakSL · SlovenianLT · LithuanianLV · LatvianET · EstonianGA · IrishMT · Maltese

  Vertaal document

  Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.

Sponsors

• Rep. Butterfield, G. K. [D-NC-1] · D · Sponsor
• Rep. Bilirakis, Gus M. [R-FL-12] · R · Sponsor
• Rep. Bishop, Sanford D. [D-GA-2] · D · Cosponsor
• Rep. Levin, Mike [D-CA-49] · D · Cosponsor
• Rep. Ross, Deborah K. [D-NC-2] · D · Cosponsor
• Rep. Wild, Susan [D-PA-7] · D · Cosponsor
• Rep. Lofgren, Zoe [D-CA-18] · D · Cosponsor
• Rep. Phillips, Dean [D-MN-3] · D · Cosponsor
• Rep. Posey, Bill [R-FL-8] · R · Cosponsor
• Rep. Burgess, Michael C. [R-TX-26] · R · Cosponsor
• Rep. Schrader, Kurt [D-OR-5] · D · Cosponsor
• Rep. Peters, Scott H. [D-CA-50] · D · Cosponsor
• Rep. Davis, Danny K. [D-IL-7] · D · Cosponsor
• Rep. Crenshaw, Dan [R-TX-2] · R · Cosponsor
• · hsif00 · Standing
• · hswm00 · Standing

Related records

No cross-record relationships stored yet.