National Genetic Diseases Act

Summary

National Genetic Diseases Act - Declares that it is the purpose of this Act to establish a national program to provide for basic and applied research, research training, testing, counseling, information, and education programs with respect to genetic diseases, including, but not limited to, sickle cell anemia, Cooley's anemia, Tay-Sachs disease, cystic fibrosis, dysautonomia, hemophilia, retinitis pigmentosa, Huntington's chorea, and muscular dystrophy. Authorizes the Secretary of Health, Education, and Welfare to make grants to public and private nonprofit entities for the establishment and operation of: (1) genetic counseling and testing programs; (2) a genetic disease information and education program; and (3) a genetic disease research, development and diagnosis and treatment demonstration program. Authorizes appropriations in specified amounts for fiscal years 1976, 1977, and 1978 for such programs. Sets forth grant application requirements and procedures. Establishes a National Advisory Commission on Ethical, Legal, and Social Aspects of Genetic Diseases. Makes it the duty of the Commission to undertake a comprehensive investigation and study of the ethical, social, and legal implications of genetics research.

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• Introduced in Senate

  summary · EN · 12 May 1975

  Open at official source

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