Accelerating Access to Critical Therapies for ALS Act

Summary

Accelerating Access to Critical Therapies for ALS Act This bill establishes grant programs to address neurodegenerative diseases, such as amyotrophic lateral sclerosis (also known as ALS or Lou Gehrig's disease), and contains other related provisions. The Department of Health and Human Services (HHS) shall award grants to eligible entities to facilitate patients' access to investigational drugs that diagnose or treat ALS. The Food and Drug Administration (FDA) shall award grants to public and private entities to cover the costs of research and development of drugs that diagnose or treat ALS and other severely debilitating neurodegenerative diseases. HHS shall also establish the Public-Private Partnership for Neurodegenerative Diseases between the National Institutes of Health, the FDA, and at least one eligible entity (generally, an institution of higher education or a nonprofit organization). The partnership shall support the development and regulatory review of drugs that address ALS and other rare neurodegenerative diseases. The FDA shall publish on its website a five-year action plan for fostering the development of drugs that improve or extend the lives of people living with rare neurodegenerative diseases.

This text is taken from the official record. PoliticalRepo does not editorialize.

Timeline

1. 25 May 2021

   Introduced

   Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

   Source: IntroReferral

2. 25 May 2021

   Introduced

   Introduced in Senate

   Source: IntroReferral

Votes

No vote records are attached yet.

Versions

• Introduced in Senate · 25 May 2021 · Download file

Documents

3 official files

• Introduced in Senate (text)

  Introduced in Senate · EN · 25 May 2021

  ViewDownloadOpen at official source

• Introduced in Senate (PDF)

  Introduced in Senate · EN · 25 May 2021

  ViewDownloadOpen at official source

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• Introduced in Senate

  summary · EN · 25 May 2021

  Open at official source

  Leesvertaling

  Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.

  Vertaal naarNL · DutchDE · GermanFR · FrenchES · SpanishIT · ItalianPL · PolishPT · PortugueseSV · SwedishDA · DanishFI · FinnishEL · GreekCS · CzechHU · HungarianRO · RomanianBG · BulgarianHR · CroatianSK · SlovakSL · SlovenianLT · LithuanianLV · LatvianET · EstonianGA · IrishMT · Maltese

  Vertaal document

  Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.

Sponsors

• Sen. Coons, Christopher A. [D-DE] · D · Sponsor
• Sen. Murkowski, Lisa [R-AK] · R · Sponsor
• Sen. King, Angus S., Jr. [I-ME] · I · Cosponsor
• Sen. Boozman, John [R-AR] · R · Cosponsor
• Sen. Shaheen, Jeanne [D-NH] · D · Cosponsor
• Sen. Capito, Shelley Moore [R-WV] · R · Cosponsor
• Sen. Bennet, Michael F. [D-CO] · D · Cosponsor
• Sen. Manchin, Joe, III [D-WV] · D · Cosponsor
• Sen. Sinema, Kyrsten [I-AZ] · D · Cosponsor
• Sen. Leahy, Patrick J. [D-VT] · D · Cosponsor
• Sen. Feinstein, Dianne [D-CA] · D · Cosponsor
• Sen. Kelly, Mark [D-AZ] · D · Cosponsor
• Sen. Padilla, Alex [D-CA] · D · Cosponsor
• Sen. Tester, Jon [D-MT] · D · Cosponsor
• Sen. Hoeven, John [R-ND] · R · Cosponsor
• Sen. Marshall, Roger [R-KS] · R · Cosponsor
• Sen. Rosen, Jacky [D-NV] · D · Cosponsor
• Sen. Inhofe, James M. [R-OK] · R · Cosponsor
• Sen. Blumenthal, Richard [D-CT] · D · Cosponsor
• Sen. Gillibrand, Kirsten E. [D-NY] · D · Cosponsor
• Sen. Murphy, Christopher [D-CT] · D · Cosponsor
• Sen. Schatz, Brian [D-HI] · D · Cosponsor
• Sen. Casey, Robert P., Jr. [D-PA] · D · Cosponsor
• Sen. Moran, Jerry [R-KS] · R · Cosponsor
• Sen. Markey, Edward J. [D-MA] · D · Cosponsor
• Sen. Collins, Susan M. [R-ME] · R · Cosponsor
• Sen. Thune, John [R-SD] · R · Cosponsor
• Sen. Warren, Elizabeth [D-MA] · D · Cosponsor
• Sen. Durbin, Richard J. [D-IL] · D · Cosponsor
• Sen. Sullivan, Dan [R-AK] · R · Cosponsor
• Sen. Klobuchar, Amy [D-MN] · D · Cosponsor
• Sen. Stabenow, Debbie [D-MI] · D · Cosponsor
• Sen. Van Hollen, Chris [D-MD] · D · Cosponsor
• Sen. Cortez Masto, Catherine [D-NV] · D · Cosponsor
• Sen. Smith, Tina [D-MN] · D · Cosponsor
• Sen. Peters, Gary C. [D-MI] · D · Cosponsor
• Sen. Hassan, Margaret Wood [D-NH] · D · Cosponsor
• Sen. Hirono, Mazie K. [D-HI] · D · Cosponsor
• Sen. Brown, Sherrod [D-OH] · D · Cosponsor
• Sen. Blunt, Roy [R-MO] · R · Cosponsor
• Sen. Luján, Ben Ray [D-NM] · D · Cosponsor
• Sen. Baldwin, Tammy [D-WI] · D · Cosponsor
• Sen. Whitehouse, Sheldon [D-RI] · D · Cosponsor
• Sen. Carper, Thomas R. [D-DE] · D · Cosponsor
• Sen. Cassidy, Bill [R-LA] · R · Cosponsor
• Sen. Barrasso, John [R-WY] · R · Cosponsor
• Sen. Lummis, Cynthia M. [R-WY] · R · Cosponsor
• Sen. Merkley, Jeff [D-OR] · D · Cosponsor

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Related records

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