Aidan's Law

Summary

Aidan's Law This bill amends the Public Health Service Act to require hospitals, child care centers, clinics, and similar institutions caring for infants who are 28 days or less of age to administer to such infants a test for adrenoleukodystrophy, a progressive genetic disease that can cause behavioral changes, seizures, and other neurological symptoms. To be eligible for funds under the Heritable Disorders Program, a state must establish adrenoleukodystrophy testing standards and procedures. These standards and procedures are subject to review and approval by the Advisory Committee on Heritable Disorders in Newborns and Children. The committee must establish standards and procedures for states without approved standards and procedures.

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Timeline

1. 3 March 2016

   Introduced

   Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

   Source: IntroReferral

2. 3 March 2016

   Introduced

   Introduced in Senate

   Source: IntroReferral

Votes

No vote records are attached yet.

Versions

• Introduced in Senate · 3 March 2016 · Official file

Documents

3 official files

• Introduced in Senate (text)

  Introduced in Senate · EN · 3 March 2016

  ViewDownloadOpen at official source

• Introduced in Senate (PDF)

  Introduced in Senate · EN · 3 March 2016

  ViewDownloadOpen at official source

• Introduced in Senate

  summary · EN · 3 March 2016

  Open at official source

Sponsors

• Charles Schumer · D · Sponsor
• Michael Bennet · D · Cosponsor
• Sen. Mikulski, Barbara A. [D-MD] · D · Cosponsor
• Kirsten Gillibrand · D · Cosponsor
• Richard Blumenthal · D · Cosponsor
• · sshr00 · Standing

Related records

• related to ← Aidan's Law