Newborn Screening Saves Lives Act of 2006

Summary

Newborn Screening Saves Lives Act of 2006 - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Associate Administrator of the Maternal and Child Health Bureau of the Health Resources and Services Administration (HRSA), to awards grants to eligible entities to: (1) provide education and training in newborn screening and congenital, genetic, and metabolic disorders to health care professionals and newborn screening laboratory personnel; (2) develop educational programs about newborn screening for parents, families, and patient advocacy and support groups; and (3) establish, maintain, and operate a system to assess and coordinate treatment relating to congenital, genetic, and metabolic disorders. Requires the Advisory Committee on Heritable Disorders in Newborns and Children to: (1) recommend a uniform screening panel for newborn screening programs that includes the heritable disorders for which all newborns should be screened; and (2) develop a model decision-matrix for newborn screening program expansion. Directs the Secretary to adopt or reject any new or pending recommendations by the Advisory Committee. Requires the Secretary, acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) provide for quality assurance for screening laboratories; (2) provide for population-based pilot testing for evaluating use of new screening tools on a mass scale; (3) collect, analyze, and make available data on certain heritable disorders; and (4) operate regional centers for the conduct of applied epidemiological research on the prevention of such disorders.

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Timeline

1. 27 April 2006

   Introduced

   Read twice and referred to the Committee on Health, Education, Labor, and Pensions. (text of measure as introduced: CR S3708-3710)

   Source: IntroReferral

2. 27 April 2006

   Introduced

   Sponsor introductory remarks on measure. (CR S3706-3707)

   Source: IntroReferral

3. 27 April 2006

   Introduced

   Introduced in Senate

   Source: IntroReferral

Votes

No vote records are attached yet.

Versions

• Introduced in Senate · 27 April 2006 · Download file

Documents

3 official files

• Introduced in Senate (text)

  Introduced in Senate · EN · 27 April 2006

  ViewDownloadOpen at official source

• Introduced in Senate (PDF)

  Introduced in Senate · EN · 27 April 2006

  ViewDownloadOpen at official source

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• Introduced in Senate

  summary · EN · 27 April 2006

  Open at official source

  Leesvertaling

  Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.

  Vertaal naarNL · DutchDE · GermanFR · FrenchES · SpanishIT · ItalianPL · PolishPT · PortugueseSV · SwedishDA · DanishFI · FinnishEL · GreekCS · CzechHU · HungarianRO · RomanianBG · BulgarianHR · CroatianSK · SlovakSL · SlovenianLT · LithuanianLV · LatvianET · EstonianGA · IrishMT · Maltese

  Vertaal document

  Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.

Sponsors

• Sen. Dodd, Christopher J. [D-CT] · D · Sponsor
• Sen. DeWine, Mike [R-OH] · R · Sponsor
• Sen. Clinton, Hillary Rodham [D-NY] · D · Cosponsor
• Sen. Durbin, Richard J. [D-IL] · D · Cosponsor
• Sen. Cochran, Thad [R-MS] · R · Cosponsor
• Sen. Lincoln, Blanche L. [D-AR] · D · Cosponsor
• Sen. Schumer, Charles E. [D-NY] · D · Cosponsor
• Sen. Coleman, Norm [R-MN] · R · Cosponsor
• Sen. Lugar, Richard G. [R-IN] · R · Cosponsor
• Sen. Murkowski, Lisa [R-AK] · R · Cosponsor
• Sen. Johnson, Tim [D-SD] · D · Cosponsor
• Sen. Hatch, Orrin G. [R-UT] · R · Cosponsor
• · sshr00 · Standing

Related records

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