United States · Bill · S
S. 3981 (118th)
DeOndra Dixon INCLUDE Project Act of 2024
Introduced
19 March 2024
Last action
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Status
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Sponsors
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Subjects
Discovery layer
Source updated
21 April 2025
Summary
DeOndra Dixon INCLUDE Project Act of 2024 This bill provides statutory authority for a National Institutes of Health (NIH) research program on Down syndrome. (Down syndrome is a genetic condition in which a person is born with an extra copy of chromosome 21, which can affect mental and physical development.) Specifically, the bill provides statutory authority for the NIH's Investigation of Co-occurring Conditions Across the Lifespan to Understand Down Syndrome Project (known as the INCLUDE Project). The project was initially established in 2018 to investigate the co-occurring conditions that affect those with Down syndrome (e.g., Alzheimer's disease) and their quality-of-life needs, particularly through (1) targeted research on chromosome 21, (2) assembling a large study population of individuals with Down syndrome, and (3) conducting clinical trials that include those with Down syndrome.
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Documents
3 official files
Introduced in Senate (text)
Introduced in Senate (text)
Introduced in Senate · EN · 19 March 2024
Introduced in Senate (PDF)
Introduced in Senate · EN · 19 March 2024
Introduced in Senate
summary · EN · 19 March 2024
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Sources
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- Official source: https://www.congress.gov/bill/118th-congress/senate-bill/3981
- Open data entity: https://api.congress.gov/v3/bill/118/s/3981