Prenatally Diagnosed Condition Awareness Act

openUnited States· United States Congress· EN

Introduced

11 March 2005

Last action

17 March 2005 · Introduced

Status

Sponsor introductory remarks on measure. (CR S2982-2983)

Summary

Prenatally Diagnosed Condition Awareness Act - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through either the Director of the National Institutes of Health (NIH), the Director of the Centers for Disease Control and Prevention (CDC), or the Administrator of the Health Resources and Services Administration (HRSA), to authorize and oversee certain activities relating to Down syndrome or other prenatally diagnosed conditions, including the awarding of grants, contracts or cooperative agreements to: (1) collect, synthesize, and disseminate current scientific information; and (2) coordinate the provision of, and access to, supportive services for patients affected, which shall include a telephone hotline, an information clearinghouse, peer-support programs, and registries of families willing to adopt children affected by such conditions. Requires the Secretary, acting through the Director of CDC, to provide assistance to State and local heath departments to integrate the results of prenatal testing into State-based vital statistics and birth defects surveillance programs. Requires a health care provider to provide certain information to a patient who receives a positive test result from a prenatal test for such a condition, including: (1) up-to-date scientific information concerning the life expectancy, clinical course, and intellectual and functional development and treatment options for a fetus diagnosed with, or a child born with, such conditions; and (2) referrals to supportive service providers. Requires the Government Accountability Office (GAO) to submit a report to Congress concerning the effectiveness of current health care and family support programs serving as resources for the families of children with disabilities.

This text is taken from the official record. PoliticalRepo does not editorialize.

Timeline

11 March 2005
Introduced
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Source: IntroReferral
11 March 2005
Introduced
Introduced in Senate
Source: IntroReferral
17 March 2005
Introduced
Sponsor introductory remarks on measure. (CR S2982-2983)
Source: IntroReferral

Votes

No vote records are attached yet.

Versions

Introduced in Senate · 11 March 2005 · Download file

Documents

3 official files

Introduced in Senate (text)

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Introduced in Senate (text)
Introduced in Senate · EN · 11 March 2005
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Introduced in Senate (PDF)
Introduced in Senate · EN · 11 March 2005
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Introduced in Senate
summary · EN · 11 March 2005
Open at official source
Leesvertaling
Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.
Vertaal naar
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Related records

related to → Prenatally Diagnosed Condition Awareness Act

Sources

PoliticalRepo is an index and interpretation layer, not the authoritative legal source.

Official source: https://www.congress.gov/bill/109th-congress/senate-bill/609
Open data entity: https://api.congress.gov/v3/bill/109/s/609
us · 109-s-609 · source updated 5 December 2025