Affirming the importance of the Orphan Drug Act, celebrating the over 750 new orphan therapies approved since its creation, and recognizing the need to continue supporting research and development for rare diseases.

Summary

This resolution applauds the growth in research and development into new therapies for rare diseases and recognizes that significant research and development efforts and related investments are needed to develop therapies to treat and cure thousands of rare diseases for which no treatment options are currently available.

This text is taken from the official record. PoliticalRepo does not editorialize.

Timeline

1. 18 March 2019

   Introduced

   Referred to the House Committee on Energy and Commerce.

   Source: IntroReferral

2. 18 March 2019

   Introduced

   Introduced in House

   Source: IntroReferral

3. 18 March 2019

   Introduced

   Introduced in House

   Source: IntroReferral

4. 19 March 2019

   Referred

   Referred to the Subcommittee on Health.

   Source: Committee

Votes

No vote records are attached yet.

Versions

• Introduced in House · 18 March 2019 · Download file

Documents

3 official files

• Introduced in House (text)

  Introduced in House · EN · 18 March 2019

  ViewDownloadOpen at official source

• Introduced in House (PDF)

  Introduced in House · EN · 18 March 2019

  ViewDownloadOpen at official source

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• Introduced in House

  summary · EN · 18 March 2019

  Open at official source

  Leesvertaling

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  Vertaal naarNL · DutchDE · GermanFR · FrenchES · SpanishIT · ItalianPL · PolishPT · PortugueseSV · SwedishDA · DanishFI · FinnishEL · GreekCS · CzechHU · HungarianRO · RomanianBG · BulgarianHR · CroatianSK · SlovakSL · SlovenianLT · LithuanianLV · LatvianET · EstonianGA · IrishMT · Maltese

  Vertaal document

  Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.

Sponsors

• Rep. Butterfield, G. K. [D-NC-1] · D · Sponsor
• Rep. Bilirakis, Gus M. [R-FL-12] · R · Sponsor
• Rep. Flores, Bill [R-TX-17] · R · Cosponsor
• Rep. Lee, Susie [D-NV-3] · D · Cosponsor
• Rep. Bishop, Sanford D. [D-GA-2] · D · Cosponsor
• Rep. Yarmuth, John A. [D-KY-3] · D · Cosponsor
• Rep. Neguse, Joe [D-CO-2] · D · Cosponsor
• · hsif00 · Standing

Related records

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