A resolution recognizing May 16, 2012, as Hereditary Angioedema Awareness Day and expressing the sense of the Senate that more research and treatments are needed for Hereditary Angioedema.

Summary

Recognizes May 16, 2012, as Hereditary Angioedema Awareness Day. Calls for increased federal research on Hereditary Angioedema (HAE). Urges the Director of the National Institutes of Health (NIH) to take a leadership role in the search for new treatment options and a cure by: (1) encouraging the National Institute of Allergy and Infectious Diseases (NIAID) to implement the research recommendations of the international HAE research community; (2) exploring collaborative research opportunities between NIAID, the Office of Rare Diseases Research, and other NIH Institutes and Centers; and (3) encouraging NIAID to provide funding for continued expansion and advancement of the HAE research portfolio. Urges the Commissioner of Food and Drugs (FDA) to take a leadership role in ensuring that new HAE treatments are developed and monitored by: (1) issuing guidance to industry on the development criteria and adverse event standards for such treatments, and (2) encouraging the participation of patient groups and considering the views of patients when discussing standards and protocols for the development and monitoring of such treatments.

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6 official files

• Agreed to Senate (text)

  Agreed to Senate · EN · 31 January 2012

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• Agreed to Senate (PDF)

  Agreed to Senate · EN · 31 January 2012

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• Passed Senate amended

  summary · EN · 31 January 2012

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• Introduced in Senate (text)

  Introduced in Senate · EN · 5 October 2011

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• Introduced in Senate (PDF)

  Introduced in Senate · EN · 5 October 2011

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• Introduced in Senate

  summary · EN · 5 October 2011

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