United States · Bill · HR
H.R. 482 (117th)
Newborn Screening Saves Lives Reauthorization Act of 2021
Introduced
25 January 2021
Last action
24 June 2021 · Introduced
Status
Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Sponsors
Rep. Roybal-Allard, Lucille [D-CA-40], Rep. Simpson, Michael K. [R-ID-2], Rep. Clark, Katherine M. [D-MA-5], Rep. Herrera Beutler, Jaime [R-WA-3], Rep. Clarke, Yvette D. [D-NY-9], Rep. Davis, Danny K. [D-IL-7], Rep. Fitzpatrick, Brian K. [R-PA-1], Rep. Sires, Albio [D-NJ-13], Rep. Raskin, Jamie [D-MD-8], Rep. DeGette, Diana [D-CO-1], Rep. Higgins, Brian [D-NY-26], Rep. Stewart, Chris [R-UT-2], Rep. Calvert, Ken [R-CA-41], Rep. Axne, Cynthia [D-IA-3], Rep. Stivers, Steve [R-OH-15], Rep. Williams, Nikema [D-GA-5], Rep. Butterfield, G. K. [D-NC-1], Rep. Smith, Adam [D-WA-9], Rep. Casten, Sean [D-IL-6], Rep. Cohen, Steve [D-TN-9], Rep. Castor, Kathy [D-FL-14], Rep. Hastings, Alcee L. [D-FL-20], Sen. Gallego, Ruben [D-AZ], Rep. Khanna, Ro [D-CA-17], Rep. Neguse, Joe [D-CO-2], Rep. Grijalva, Raúl M. [D-AZ-7], Rep. Underwood, Lauren [D-IL-14], Rep. Jackson Lee, Sheila [D-TX-18], Rep. Chu, Judy [D-CA-28], Rep. Cole, Tom [R-OK-4], Rep. Larsen, Rick [D-WA-2], Rep. Bonamici, Suzanne [D-OR-1], Rep. Yarmuth, John A. [D-KY-3], Rep. Wexton, Jennifer [D-VA-10], Rep. Hayes, Jahana [D-CT-5], Rep. Carbajal, Salud O. [D-CA-24], Rep. O'Halleran, Tom [D-AZ-1], Rep. Meeks, Gregory W. [D-NY-5], Rep. Connolly, Gerald E. [D-VA-11], Rep. Himes, James A. [D-CT-4], Del. Norton, Eleanor Holmes [D-DC-At Large], Rep. Barragán, Nanette Diaz [D-CA-44], Rep. Manning, Kathy E. [D-NC-6], Rep. Bacon, Don [R-NE-2], Rep. Moore, Blake D. [R-UT-1], Rep. Krishnamoorthi, Raja [D-IL-8], Rep. DeSaulnier, Mark [D-CA-10], Rep. Ross, Deborah K. [D-NC-2]
Subjects
Healthcare
Source updated
5 December 2025
Summary
Newborn Screening Saves Lives Reauthorization Act of 2021 This bill reauthorizes through FY2026 and revises several programs and activities relating to newborn screening for certain conditions and genetic, endocrine, and metabolic diseases. Among its changes, the bill reauthorizes and makes mandatory the Hunter Kelly Research Program at the National Institutes of Health, and national surveillance activities conducted by the Centers for Disease Control and Prevention. The bill also aligns statutory requirements for research on non-identified newborn blood spots with federal regulations governing research on human subjects. These blood spots are collected as part of newborn screening programs, and some states make them available for biomedical and public health research. Under current regulations, research on non-identified bio-specimens such as blood spots is not considered to be research on human subjects, to which additional protections apply.
This text is taken from the official record. PoliticalRepo does not editorialize.
Timeline
25 January 2021
Introduced
Referred to the House Committee on Energy and Commerce.
Source: IntroReferral
25 January 2021
Introduced
Introduced in House
Source: IntroReferral
25 January 2021
Introduced
Introduced in House
Source: IntroReferral
2 February 2021
Referred
Referred to the Subcommittee on Health.
Source: Committee
22 June 2021
Vote
At the conclusion of debate, the Yeas and Nays were demanded and ordered. Pursuant to the provisions of clause 8, rule XX, the Chair announced that further proceedings on the motion would be postponed.
Source: Floor
22 June 2021
Floor
DEBATE - The House proceeded with forty minutes of debate on H.R. 482.
Source: Floor
22 June 2021
Floor
Considered under suspension of the rules. (consideration: CR H2940-2942; text: CR H2940-2941)
Source: Floor
22 June 2021
Floor
Mr. Pallone moved to suspend the rules and pass the bill.
Source: Floor
23 June 2021
Passed
Pursuant to section 11 of H. Res. 486, and the motion offered by Mr. McGovern, the following bills passed under suspension of the rules: H.R. 482; H.R. 704; H.R. 961, as amended; H.R. 1314; H.R. 2571, as amended; H.R. 2679, as amended; H.R. 2694; H.R. 2922, as amended; H.R. 3182; H.R. 3239; H.R. 3241, as amended; H.R. 3723; H.R. 3752; H.R. 3841; S. 409; and S. 1340. (consideration: CR H3026-3052; text: CR H3026-3027)
Source: Floor
23 June 2021
Passed
Passed/agreed to in House: Pursuant to section 11 of H. Res. 486, and the motion offered by Mr. McGovern, the following bills passed under suspension of the rules: H.R. 482; H.R. 704; H.R. 961, as amended; H.R. 1314; H.R. 2571, as amended; H.R. 2679, as amended; H.R. 2694; H.R. 2922, as amended; H.R. 3182; H.R. 3239; H.R. 3241, as amended; H.R. 3723; H.R. 3752; H.R. 3841; S. 409; and S. 1340.(consideration: CR H3026-3052; text: CR H3026-3027)
Source: Floor
23 June 2021
Floor
Pursuant to the provisions of H. Res. 486, proceedings on H.R. 482 are considered vacated.
Source: Floor
24 June 2021
Introduced
Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Source: IntroReferral
Votes
No vote records are attached yet.
Versions
- Referred in Senate · 24 June 2021 · Download file
- Engrossed in House · 23 June 2021 · Download file
- Introduced in House · 25 January 2021 · Download file
Documents
8 official files
Referred in Senate (text)
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Referred in Senate (text)
Referred in Senate · EN · 24 June 2021
Referred in Senate (PDF)
Referred in Senate · EN · 24 June 2021
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Engrossed in House (text)
Engrossed in House · EN · 23 June 2021
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Engrossed in House (PDF)
Engrossed in House · EN · 23 June 2021
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Passed House
summary · EN · 23 June 2021
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Introduced in House (text)
Introduced in House · EN · 25 January 2021
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Introduced in House (PDF)
Introduced in House · EN · 25 January 2021
ViewDownloadOpen at official source
Leesvertaling
Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.
Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.
Introduced in House
summary · EN · 25 January 2021
Leesvertaling
Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.
Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.
Sponsors
- Rep. Roybal-Allard, Lucille [D-CA-40] · D · Sponsor
- Rep. Simpson, Michael K. [R-ID-2] · R · Sponsor
- Rep. Clark, Katherine M. [D-MA-5] · D · Sponsor
- Rep. Herrera Beutler, Jaime [R-WA-3] · R · Sponsor
- Rep. Clarke, Yvette D. [D-NY-9] · D · Sponsor
- Rep. Davis, Danny K. [D-IL-7] · D · Sponsor
- Rep. Fitzpatrick, Brian K. [R-PA-1] · R · Sponsor
- Rep. Sires, Albio [D-NJ-13] · D · Sponsor
- Rep. Raskin, Jamie [D-MD-8] · D · Sponsor
- Rep. DeGette, Diana [D-CO-1] · D · Sponsor
- Rep. Higgins, Brian [D-NY-26] · D · Sponsor
- Rep. Stewart, Chris [R-UT-2] · R · Sponsor
- Rep. Calvert, Ken [R-CA-41] · R · Sponsor
- Rep. Axne, Cynthia [D-IA-3] · D · Sponsor
- Rep. Stivers, Steve [R-OH-15] · R · Sponsor
- Rep. Williams, Nikema [D-GA-5] · D · Sponsor
- Rep. Butterfield, G. K. [D-NC-1] · D · Sponsor
- Rep. Smith, Adam [D-WA-9] · D · Sponsor
- Rep. Casten, Sean [D-IL-6] · D · Sponsor
- Rep. Cohen, Steve [D-TN-9] · D · Sponsor
- Rep. Castor, Kathy [D-FL-14] · D · Sponsor
- Rep. Hastings, Alcee L. [D-FL-20] · D · Sponsor
- Sen. Gallego, Ruben [D-AZ] · D · Sponsor
- Rep. Khanna, Ro [D-CA-17] · D · Sponsor
- Rep. Neguse, Joe [D-CO-2] · D · Sponsor
- Rep. Grijalva, Raúl M. [D-AZ-7] · D · Cosponsor
- Rep. Underwood, Lauren [D-IL-14] · D · Cosponsor
- Rep. Jackson Lee, Sheila [D-TX-18] · D · Cosponsor
- Rep. Chu, Judy [D-CA-28] · D · Cosponsor
- Rep. Cole, Tom [R-OK-4] · R · Cosponsor
- Rep. Larsen, Rick [D-WA-2] · D · Cosponsor
- Rep. Bonamici, Suzanne [D-OR-1] · D · Cosponsor
- Rep. Yarmuth, John A. [D-KY-3] · D · Cosponsor
- Rep. Wexton, Jennifer [D-VA-10] · D · Cosponsor
- Rep. Hayes, Jahana [D-CT-5] · D · Cosponsor
- Rep. Carbajal, Salud O. [D-CA-24] · D · Cosponsor
- Rep. O'Halleran, Tom [D-AZ-1] · D · Cosponsor
- Rep. Meeks, Gregory W. [D-NY-5] · D · Cosponsor
- Rep. Connolly, Gerald E. [D-VA-11] · D · Cosponsor
- Rep. Himes, James A. [D-CT-4] · D · Cosponsor
- Del. Norton, Eleanor Holmes [D-DC-At Large] · D · Cosponsor
- Rep. Barragán, Nanette Diaz [D-CA-44] · D · Cosponsor
- Rep. Manning, Kathy E. [D-NC-6] · D · Cosponsor
- Rep. Bacon, Don [R-NE-2] · R · Cosponsor
- Rep. Moore, Blake D. [R-UT-1] · R · Cosponsor
- Rep. Krishnamoorthi, Raja [D-IL-8] · D · Cosponsor
- Rep. DeSaulnier, Mark [D-CA-10] · D · Cosponsor
- Rep. Ross, Deborah K. [D-NC-2] · D · Cosponsor
Showing 48 of 60 sponsors and actors.
Related records
- related to ← Newborn Screening Saves Lives Reauthorization Act of 2021
- related to ← Providing for consideration of the bill (H.R. 2062) to amend the Age Discrimination in Employment Act of 1967 and other laws to clarify appropriate standards for Federal employment discrimination and retaliation claims, and for other purposes; providing for consideration of the bill (H.R. 239) to amend title 38, United States Code, to provide for limitations on copayments for contraception furnished by the Department of Veterans Affairs, and for other purposes; providing for consideration of the bill (H.R. 1443) to amend the Equal Credit Opportunity Act to require the collection of small business loan data related to LGBTQ- owned businesses; providing for consideration of the joint resolution (S.J. Res. 13) providing for congressional disapproval under chapter 8 of title 5, United States Code, of the rule submitted by the Equal Employment Opportunity Commission relating to "Update of Commission's Conciliation Procedures"; providing for consideration of the joint resolution (S.J. Res. 14) providing for congressional disapproval under chapter 8 of title 5, United States Code, of the rule submitted by the Environmental Protection Agency relating to "Oil and Natural Gas Sector: Emission Standards for New, Reconstructed, and Modified Sources Review"; providing for consideration of the joint resolution (S.J. Res. 15) providing for congressional disapproval under chapter 8 of title 5, United States Code, of the rule submitted by the Office of the Comptroller of Currency relating to "National Banks and Federal Savings Associations as Lenders"; and for other purposes.
Sources
PoliticalRepo is an index and interpretation layer, not the authoritative legal source.
- Official source: https://www.congress.gov/bill/117th-congress/house-bill/482
- Open data entity: https://api.congress.gov/v3/bill/117/hr/482
- us · 117-hr-482 · source updated 5 December 2025