RARE Act of 2018

Summary

Rare disease Advancement, Research, and Education Act of 2018 or the RARE Act of 2018 This bill reauthorizes through FY2023 the Office of Rare Diseases in the National Institutes of Health. The bill requires (1) the Centers for Disease Control and Prevention to expand infrastructure and activities to track the epidemiology of rare diseases and conditions and to incorporate this information into a National Rare Disease or Condition Surveillance System, and (2) the Agency for Healthcare Research and Quality to expand its activities to increase providers' awareness of rare diseases and conditions.

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Timeline

1. 27 February 2018

   Introduced

   Referred to the House Committee on Energy and Commerce.

   Source: IntroReferral

2. 27 February 2018

   Introduced

   Introduced in House

   Source: IntroReferral

3. 27 February 2018

   Introduced

   Introduced in House

   Source: IntroReferral

4. 2 March 2018

   Referred

   Referred to the Subcommittee on Health.

   Source: Committee

Votes

No vote records are attached yet.

Versions

• Introduced in House · 27 February 2018 · Official file

Documents

3 official files

• Introduced in House (text)

  Introduced in House · EN · 27 February 2018

  ViewDownloadOpen at official source

• Introduced in House (PDF)

  Introduced in House · EN · 27 February 2018

  ViewDownloadOpen at official source

• Introduced in House

  summary · EN · 27 February 2018

  Open at official source

Sponsors

• Rep. Carson, André [D-IN-7] · D · Sponsor
• Ryan Costello · R · Sponsor
• Del. Norton, Eleanor Holmes [D-DC-At Large] · D · Cosponsor
• Rep. Pocan, Mark [D-WI-2] · D · Cosponsor
• PETER VISCLOSKY · D · Cosponsor
• Stephanie Murphy · D · Cosponsor
• Rep. Matsui, Doris O. [D-CA-7] · D · Cosponsor
• Mo Brooks · R · Cosponsor
• Rep. Fitzpatrick, Brian K. [R-PA-1] · R · Cosponsor
• Rep. Khanna, Ro [D-CA-17] · D · Cosponsor
• Peter Roskam · R · Cosponsor
• Elizabeth Esty · D · Cosponsor
• Julia Brownley · D · Cosponsor
• Rep. Suozzi, Thomas R. [D-NY-3] · D · Cosponsor
• PETER DEFAZIO · D · Cosponsor
• Karen Bass · D · Cosponsor
• Jaime Herrera Beutler · R · Cosponsor
• Rep. Lieu, Ted [D-CA-36] · D · Cosponsor
• Rep. Beatty, Joyce [D-OH-3] · D · Cosponsor
• Thomas MacArthur · R · Cosponsor
• · hsif00 · Standing

Related records

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