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United States · Bill · S

S. 1053 (108th)

Genetic Information Nondiscrimination Act of 2003

openUnited States· United States Congress· EN

Introduced

13 May 2003

Last action

15 October 2003 · Floor

Status

Held at the desk.

Sponsors

Sen. Snowe, Olympia J. [R-ME], Sen. Frist, William H. [R-TN], Sen. Jeffords, James M. [I-VT], Sen. Enzi, Michael B. [R-WY], Sen. Collins, Susan M. [R-ME], Sen. Hagel, Chuck [R-NE], Sen. DeWine, Mike [R-OH], Sen. Gregg, Judd [R-NH], Sen. Talent, Jim [R-MO], Sen. Hatch, Orrin G. [R-UT], Sen. Daschle, Thomas A. [D-SD], Sen. Kerry, John F. [D-MA], Sen. Biden, Joseph R., Jr. [D-DE], Sen. Leahy, Patrick J. [D-VT], Sen. Landrieu, Mary L. [D-LA], Sen. Mikulski, Barbara A. [D-MD], Sen. Nelson, Ben [D-NE], Sen. Johnson, Tim [D-SD], Sen. Cantwell, Maria [D-WA], Sen. Cornyn, John [R-TX], Sen. Kennedy, Edward M. [D-MA], Sen. Harkin, Tom [D-IA], Sen. Dodd, Christopher J. [D-CT], Sen. Lautenberg, Frank R. [D-NJ]

Subjects

Healthcare, Education

Source updated

10 February 2026

Healthcare · Education

Official sourceDownload fileView documentsShare

Summary

Genetic Information Nondiscrimination Act of 2003 - Amends the Employee Retirement Income Security Act of 1974, the Public Health Service Act, and the Internal Revenue Code to prohibit health discrimination on the basis of genetic information or services. Defines genetic information as genetic tests of an individual or family member or occurrence of a disease or disorder in family members used to predict risk of disease in asymptomatic or undiagnosed individuals. Defines genetic services as health services provided for genetic education and counseling. Prohibits group health plans or health insurers offering group coverage from using genetic information to impose enrollment restrictions or adjust group premiums. Prohibits requests for genetic testing or results except as necessary for treatment, payment, or health care operations. Amends the Public Health Service Act to prohibit such discrimination in coverage offered in the individual market. Requires the Secretary of the Treasury to issue final regulations, coordinating with the Secretaries of Health and Human Services and Labor through an interagency memorandum of understanding. Makes it an unlawful employment practice for an employer, employment agency, labor organization, or training program to discriminate against an individual or deprive such individual of employment opportunities because of genetic information. Prohibits the collection of genetic information except where necessary to monitor the effects of toxic substances in the workplace when authorized by the employee, or as required by law. Requires genetic information to be treated as part of an individual's confidential medical record, limiting disclosure to the individual, the family, health researchers, or as required by law or court order. Grants enforcement powers to the Equal Employment Opportunity Commission.

This text is taken from the official record. PoliticalRepo does not editorialize.

Timeline

  1. 13 May 2003

    Introduced

    Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

    Source: IntroReferral

  2. 13 May 2003

    Introduced

    Introduced in Senate

    Source: IntroReferral

  3. 21 May 2003

    Reported

    Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably.

    Source: Committee

  4. 31 July 2003

    Calendars

    Placed on Senate Legislative Calendar under General Orders. Calendar No. 247.

    Source: Calendars

  5. 31 July 2003

    Reported

    Committee on Health, Education, Labor, and Pensions. Reported by Senator Gregg with an amendment in the nature of a substitute. With written report No. 108-122.

    Source: Committee

  6. 31 July 2003

    Reported

    Committee on Health, Education, Labor, and Pensions. Reported by Senator Gregg with an amendment in the nature of a substitute. With written report No. 108-122.

    Source: Committee

  7. 2 October 2003

    Reported

    Measure laid before Senate by unanimous consent. (consideration: CR S12403-12417; text of measure reported in Senate: CR S12404-12416)

    Source: Floor

  8. 14 October 2003

    Passed

    Considered by Senate. (consideration: CR S12493-12508; text as passed Senate: CR S12499-12508)

    Source: Floor

  9. 14 October 2003

    Vote

    Passed/agreed to in Senate: Passed Senate with an amendment by Yea-Nay Vote. 95 - 0. Record Vote Number: 377.

    Source: Floor

  10. 15 October 2003

    Floor

    Held at the desk.

    Source: Floor

  11. 15 October 2003

    Floor

    Received in the House.

    Source: Floor

  12. 15 October 2003

    Floor

    Message on Senate action sent to the House.

    Source: Floor

Votes

14 October 2003 · Bill Passed · On Passage of the Bill S. 1053 · Bill Passed · Official source

Yes 95 · No 0 · Abstain — · Absent/not voting 5

Showing the first 4 recorded positions. Vote totals above are complete.

Versions

Documents

9 official files

Engrossed in Senate (text)

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Leesvertaling

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  • Engrossed in Senate (text)

    Engrossed in Senate · EN · 14 October 2003

    ViewDownloadOpen at official source

  • Engrossed in Senate (PDF)

    Engrossed in Senate · EN · 14 October 2003

    ViewDownloadOpen at official source

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  • Passed Senate amended

    summary · EN · 14 October 2003

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  • Reported to Senate (text)

    Reported to Senate · EN · 31 July 2003

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  • Reported to Senate (PDF)

    Reported to Senate · EN · 31 July 2003

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  • Reported to Senate with amendment(s)

    summary · EN · 31 July 2003

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  • Introduced in Senate (text)

    Introduced in Senate · EN · 13 May 2003

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  • Introduced in Senate (PDF)

    Introduced in Senate · EN · 13 May 2003

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  • Introduced in Senate

    summary · EN · 13 May 2003

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Sponsors

Related records

Sources

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