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United States · Bill · S

S. 1273 (111th)

National MS and Parkinson's Disease Registries Act

referredUnited States· United States Congress· EN

Introduced

16 June 2009

Last action

16 June 2009 · Introduced

Status

Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

Sponsors

Sen. Dorgan, Byron L. [D-ND], Sen. Stabenow, Debbie [D-MI], Sen. Udall, Mark [D-CO], Sen. Isakson, Johnny [R-GA], Sen. Chambliss, Saxby [R-GA], Sen. Dodd, Christopher J. [D-CT], Sen. Nelson, Ben [D-NE], Sen. Durbin, Richard J. [D-IL], Sen. Begich, Mark [D-AK], Sen. Udall, Tom [D-NM], Sen. Conrad, Kent [D-ND], Sen. Sanders, Bernard [I-VT], Sen. Lautenberg, Frank R. [D-NJ], Sen. Franken, Al [D-MN], Sen. Akaka, Daniel K. [D-HI], Sen. Johanns, Mike [R-NE], Sen. Cardin, Benjamin L. [D-MD], Sen. Whitehouse, Sheldon [D-RI], Sen. Inouye, Daniel K. [D-HI], Sen. Casey, Robert P., Jr. [D-PA], Sen. Boxer, Barbara [D-CA], Sen. Schumer, Charles E. [D-NY], Sen. Grassley, Chuck [R-IA], Sen. Murkowski, Lisa [R-AK], Sen. Gillibrand, Kirsten E. [D-NY], Sen. Crapo, Mike [R-ID], Sen. Brown, Sherrod [D-OH], Sen. Wicker, Roger F. [R-MS], Sen. Menendez, Robert [D-NJ], Sen. Bingaman, Jeff [D-NM], Sen. Hagan, Kay R. [D-NC]

Subjects

Healthcare, Defence, Environment, Transport

Source updated

4 December 2025

Healthcare · Defence · Environment · Transport

Official sourceDownload fileView documentsShare

Summary

National MS and Parkinson's Disease Registries Act - Amends the Public Health Service Act to require the Secretary of Health and Human Services (HHS) , acting through the Director of the Agency for Toxic Substances and Disease Registry, to: (1) develop a system to collect data on multiple sclerosis (MS) and a system to collect data on Parkinson's disease; (2) establish a national surveillance system for the collection and storage of data for each such disease, including population-based registries of U.S. cases of MS and Parkinson's disease; (3) provide analysis regarding expansion of national disease surveillance systems for other neurological diseases and disorders; and (4) establish the Advisory Committee on Neurological Disease Registries. Allows the Secretary, acting through the Director, to provide for the collection, analysis, and reporting of data on MS and Parkinson's disease. Requires the Secretary, acting through the Director, to: (1) identify, build upon, expand, and coordinate existing data and surveillance systems, surveys, registries, and other federal public health and environmental infrastructure wherever possible; and (2) provide for research access to Parkinson's disease and MS data. Requires the Secretary to ensure that epidemiological and other types of information collected are made available to agencies such as the National Institutes of Health (NIH), the Food and Drug Administration (FDA), the Department of Veterans Affairs (VA), and the Department of Defense (DOD).

This text is taken from the official record. PoliticalRepo does not editorialize.

Timeline

  1. 16 June 2009

    Introduced

    Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

    Source: IntroReferral

  2. 16 June 2009

    Introduced

    Introduced in Senate

    Source: IntroReferral

Votes

No vote records are attached yet.

Versions

Documents

3 official files

Introduced in Senate (text)

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  • Introduced in Senate (text)

    Introduced in Senate · EN · 16 June 2009

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  • Introduced in Senate (PDF)

    Introduced in Senate · EN · 16 June 2009

    ViewDownloadOpen at official source

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  • Introduced in Senate

    summary · EN · 16 June 2009

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Sponsors

Related records

Sources

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