Hemophilia Act

Summary

Hemophilia Act - Provides that any individual suffering from hemophilia may file a claim for benefits under this part with the Secretary of Health, Education and Welfare in such form and containing such information as he may reasonably require. States that benefits under this part shall be paid to, or on behalf of a claimant, in an amount equal to 100 percent of the actual cost of providing blood, blood products, and services associated with the treatment of hemophilia, less: (1) amounts payable by third parties (including governmental agencies), and (2) amounts determined by the Secretary (in accordance with this Act) to be payable by the individual suffering from hemophilia. Authorizes to be appropriated for the fiscal years beginning July 1, 1973, and ending June 30, 1976, such sums as may be necessary to carry out the purposes of this Act. Directs the Secretary to provide for the establishment of no less than fifteen new centers for the diagnosis and treatment of individuals suffering from hemophilia. Authorizes to be appropriated to carry out the purposes of this section $5,000,000 for the fiscal year ending June 30, 1974, $10,000,000 for the fiscal year ending June 30, 1975, and $15,000,000 for the fiscal year ending June 30, 1976. Provides that the Secretary shall establish a program within the Public Health Service to provide for diagnosis, treatment, and counseling of individuals suffering from hemophilia. States that such program shall be made available through the facilities of the Public Health Service to any individual requesting diagnosis, treatment, or counseling for hemophilia. Permits the Secretary to make grants to public and nonprofit private entities, and to enter into contracts with public and private entities and individuals to establish blood fractionation centers, for the purpose of fractionating and making available for distribution blood and blood products, in accordance with regulations prescribed by the Secretary to hemophilia treatment and diagnostic centers. Authorizes to be appropriated $5,000,000 for the fiscal year ending June 30, 1974, $10,000,000 for the fiscal year ending June 30, 1975, and $15,000,000 for the fiscal year ending June 30, 1976 for this purpose. Establishes in the National Institutes of Health a National Hemophilia Advisory Board to be composed of twenty members. States that it shall be the function of the Board to: (1) establish guidelines for the diagnosis and treatment of persons suffering from hemophilia; and (2) submit a report to the President for transmittal to the Congress not later than January 31 of each year on the scope of activities conducted under this Act.

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1 official file

• Introduced in Senate

  summary · EN · 22 March 1973

  Open at official source

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