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United States · Law · HR

H.R. 1281 (113th)

Newborn Screening Saves Lives Reauthorization Act of 2014

enactedUnited States· United States Congress· EN

Introduced

20 March 2013

Last action

18 December 2014 · President

Status

Became Public Law No: 113-240.

Sponsors

Rep. Roybal-Allard, Lucille [D-CA-40], Rep. Simpson, Michael K. [R-ID-2], Rep. Moore, Gwen [D-WI-4], Rep. Grijalva, Raúl M. [D-AZ-7], Rep. Waxman, Henry A. [D-CA-33], Rep. Rogers, Harold [R-KY-5], Rep. Higgins, Brian [D-NY-26], Rep. Rangel, Charles B. [D-NY-15], Rep. Lee, Barbara [D-CA-12], Rep. Speier, Jackie [D-CA-14], Rep. McGovern, James P. [D-MA-2], Rep. Capps, Lois [D-CA-24], Rep. Jackson Lee, Sheila [D-TX-18], Rep. Hastings, Alcee L. [D-FL-20], Rep. McCollum, Betty [D-MN-4], David Scott, Rep. Clarke, Yvette D. [D-NY-9], Rep. Conyers, John, Jr. [D-MI-13], Rep. Dingell, John D. [D-MI-12], Rep. Huffman, Jared [D-CA-2], Rep. DeLauro, Rosa L. [D-CT-3], Rep. Crowley, Joseph [D-NY-14], Rep. Cohen, Steve [D-TN-9], Rep. Slaughter, Louise McIntosh [D-NY-25], Rep. Bishop, Sanford D. [D-GA-2], Rep. Castor, Kathy [D-FL-14], Rep. Takano, Mark [D-CA-39], Rep. Wilson, Frederica S. [D-FL-24], Rep. Loebsack, David [D-IA-2], Rep. Bera, Ami [D-CA-6], Rep. Walden, Greg [R-OR-2], Rep. Nadler, Jerrold [D-NY-12], Rep. Green, Gene [D-TX-29], Rep. Delaney, John K. [D-MD-6], Rep. Collins, Chris [R-NY-27], Rep. Pocan, Mark [D-WI-2], Rep. Heck, Denny [D-WA-10], Rep. Farr, Sam [D-CA-20], Rep. Matheson, Jim [D-UT-2], Rep. Beatty, Joyce [D-OH-3], Rep. Kirkpatrick, Ann [D-AZ-2], Rep. Moran, James P. [D-VA-8], Rep. Sires, Albio [D-NJ-13], Rep. Schakowsky, Janice D. [D-IL-9], Rep. Costa, Jim [D-CA-21], Rep. Sanchez, Loretta [D-CA-46], Rep. Ruiz, Raul [D-CA-25], Rep. Negrete McLeod, Gloria [D-CA-35]

Subjects

Healthcare

Source updated

7 April 2025

Healthcare

Official sourceDownload fileView documentsShare

Summary

Newborn Screening Saves Lives Reauthorization Act of 2013 - Amends the Public Health Service Act to extend and revise a grant program for screening, counseling, and other services related to heritable disorders. Expands eligible grantees to include a health professional organization and an early childhood health system. Extends a grant program to evaluate the effectiveness of screening, counseling, or health care services in reducing the morbidity and mortality caused by heritable disorders in newborns and children. Expands the program to include evaluation of treatment and follow-up care for newborns and their families after screening and diagnosis. Extends for five years the operation of the Advisory Committee on Heritable Disorders in Newborns and Children. Authorizes the Secretary of Health and Human Services (HHS) to continue the Advisory Committee after such time. Requires the Advisory Committee to meet in person at least twice each year. Extends the clearinghouse for newborn screening information. Expands the duties of the clearinghouse to include: (1) maintaining current data on the number of conditions for which screening is conducted in each state; and (2) establishing or disseminating guidelines for services and personnel necessary for follow-up, diagnosis, counseling, and treatment of to conditions detected by newborn screening. Extends requirements for the Secretary to provide for quality assurance of laboratories involved in screening newborns and children for heritable disorders. Extends the Interagency Coordinating Committee on Newborn and Child Screening. Authorizes the Secretary to have the Hunter Kelly Newborn Screening Research Program to: (1) provide research and data for newborn conditions under review by the Advisory Committee to be added to the Recommended Uniform Screening Panel; and (2) conduct pilot studies on conditions recommended by the Advisory Committee to ensure that screenings are ready for nationwide implementation. Directs the Secretary, acting through the Director of the Centers for Disease Control and Prevention (CDC), to award grants to, or enter into cooperative agreements with, eligible entities to develop longitudinal followup and tracking programs for newborn screening.

This text is taken from the official record. PoliticalRepo does not editorialize.

Timeline

  1. 20 March 2013

    Introduced

    Referred to the House Committee on Energy and Commerce.

    Source: IntroReferral

  2. 20 March 2013

    Introduced

    Sponsor introductory remarks on measure. (CR H1643)

    Source: IntroReferral

  3. 20 March 2013

    Introduced

    Introduced in House

    Source: IntroReferral

  4. 20 March 2013

    Introduced

    Introduced in House

    Source: IntroReferral

  5. 22 March 2013

    Referred

    Referred to the Subcommittee on Health.

    Source: Committee

  6. 27 February 2014

    Committee

    Forwarded by Subcommittee to Full Committee (Amended) by Voice Vote .

    Source: Committee

  7. 27 February 2014

    Committee

    Subcommittee Consideration and Mark-up Session Held.

    Source: Committee

  8. 3 April 2014

    Reported

    Ordered to be Reported (Amended) by Unanimous Consent.

    Source: Committee

  9. 3 April 2014

    Committee

    Committee Consideration and Mark-up Session Held.

    Source: Committee

  10. 19 June 2014

    Calendars

    Placed on the Union Calendar, Calendar No. 354.

    Source: Calendars

  11. 19 June 2014

    Reported

    Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 113-478.

    Source: Committee

  12. 19 June 2014

    Reported

    Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 113-478.

    Source: Committee

  13. 24 June 2014

    Passed

    On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote. (text: CR H5696-5697)

    Source: Floor

  14. 24 June 2014

    Passed

    Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote.(text: CR H5696-5697)

    Source: Floor

  15. 24 June 2014

    Floor

    DEBATE - The House proceeded with forty minutes of debate on H.R. 1281.

    Source: Floor

  16. 24 June 2014

    Floor

    Considered under suspension of the rules. (consideration: CR H5696-5699)

    Source: Floor

  17. 24 June 2014

    Floor

    Mr. Pitts moved to suspend the rules and pass the bill, as amended.

    Source: Floor

  18. 25 June 2014

    Introduced

    Received in the Senate, read twice.

    Source: IntroReferral

  19. 8 December 2014

    Floor

    Measure laid before Senate by unanimous consent. (consideration: CR S6395)

    Source: Floor

  20. 8 December 2014

    Passed

    Passed/agreed to in Senate: Passed Senate with an amendment by Unanimous Consent.

    Source: Floor

  21. 9 December 2014

    Floor

    Message on Senate action sent to the House.

    Source: Floor

  22. 10 December 2014

    Passed

    Resolving differences -- House actions: On motion that the House agree to the Senate amendment Agreed to without objection.(text as House agreed to Senate amendment: CR H8994-8998)

    Source: NotUsed

  23. 10 December 2014

    Passed

    Motion to reconsider laid on the table Agreed to without objection.

    Source: ResolvingDifferences

  24. 10 December 2014

    Passed

    On motion that the House agree to the Senate amendment Agreed to without objection. (text as House agreed to Senate amendment: CR H8994-8998)

    Source: ResolvingDifferences

  25. 10 December 2014

    ResolvingDifferences

    Mrs. Ellmers asked unanimous consent that the House agree to the Senate amendment. (consideration: CR H8994-8998)

    Source: ResolvingDifferences

  26. 12 December 2014

    Floor

    Presented to President.

    Source: Floor

  27. 12 December 2014

    President

    Presented to President.

    Source: President

  28. 18 December 2014

    Became law

    Became Public Law No: 113-240.

    Source: President

  29. 18 December 2014

    Became law

    Signed by President.

    Source: BecameLaw

  30. 18 December 2014

    President

    Signed by President.

    Source: President

Votes

No vote records are attached yet.

Versions

Documents

19 official files

Enrolled Bill (text)

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  • Enrolled Bill (text)

    Enrolled Bill · EN

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  • Enrolled Bill (PDF)

    Enrolled Bill · EN

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  • Public Law (text)

    Public Law · EN · 19 December 2014

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  • Public Law (PDF)

    Public Law · EN · 19 December 2014

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  • Public Law

    summary · EN · 18 December 2014

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  • Engrossed Amendment Senate (text)

    Engrossed Amendment Senate · EN · 8 December 2014

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  • Engrossed Amendment Senate (PDF)

    Engrossed Amendment Senate · EN · 8 December 2014

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  • Passed Senate amended

    summary · EN · 8 December 2014

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  • Referred in Senate (text)

    Referred in Senate · EN · 25 June 2014

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  • Referred in Senate (PDF)

    Referred in Senate · EN · 25 June 2014

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  • Engrossed in House (text)

    Engrossed in House · EN · 24 June 2014

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  • Engrossed in House (PDF)

    Engrossed in House · EN · 24 June 2014

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  • Passed House amended

    summary · EN · 24 June 2014

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  • Reported in House (text)

    Reported in House · EN · 19 June 2014

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  • Reported in House (PDF)

    Reported in House · EN · 19 June 2014

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  • Reported to House with amendment(s)

    summary · EN · 19 June 2014

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  • Introduced in House (text)

    Introduced in House · EN · 20 March 2013

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  • Introduced in House (PDF)

    Introduced in House · EN · 20 March 2013

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  • Introduced in House

    summary · EN · 20 March 2013

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