A resolution recognizing June 2009 as the first National Hemorrhagic Telangiecstasia (HHT) month, established to increase awareness of HHT, which is a complex genetic blood vessel disorder that affects approximately 70,000 people in the United States.

Summary

Expresses support for the designation of June 2009 as National Hereditary Hemorrhagic Telangiecstasia (HHT) month. Recognizes: (1) the need to pursue research to find better treatments and a cure for HHT; (2) the HHT Foundation International as the only U.S. advocacy organization working to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected; (3) the importance of comprehensive care centers in providing complete care and treatment for HHT patients; (4) that stroke, lung, and brain hemorrhages can be prevented through early diagnosis, screening, and treatment of HHT; (5) that severe hemorrhages in the nose and gastrointestinal tract can be controlled through intervention and that heart failure can be managed through proper diagnosis and treatments of HHT; and (6) that a leading medical and academic institution estimated that $6.6 billion of one-time health care costs can be saved through aggressive management of HHT in the at-risk population. Acknowledges the need to identify the approximately 90% of the HHT population that has not yet been diagnosed and that is at risk for death or disability due to sudden rupture of the blood vessels in major organs in the body.

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Timeline

1. 11 May 2009

   Introduced

   Referred to the Committee on Health, Education, Labor, and Pensions. (text of measure as introduced: CR S5332)

   Source: IntroReferral

2. 11 May 2009

   Introduced

   Introduced in Senate

   Source: IntroReferral

Votes

No vote records are attached yet.

Versions

• Introduced in Senate · 11 May 2009 · Download file

Documents

3 official files

• Introduced in Senate (text)

  Introduced in Senate · EN · 11 May 2009

  ViewDownloadOpen at official source

• Introduced in Senate (PDF)

  Introduced in Senate · EN · 11 May 2009

  ViewDownloadOpen at official source

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  Vertaal document

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• Introduced in Senate

  summary · EN · 11 May 2009

  Open at official source

  Leesvertaling

  Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.

  Vertaal naarNL · DutchDE · GermanFR · FrenchES · SpanishIT · ItalianPL · PolishPT · PortugueseSV · SwedishDA · DanishFI · FinnishEL · GreekCS · CzechHU · HungarianRO · RomanianBG · BulgarianHR · CroatianSK · SlovakSL · SlovenianLT · LithuanianLV · LatvianET · EstonianGA · IrishMT · Maltese

  Vertaal document

  Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.

Sponsors

• Sen. Johnson, Tim [D-SD] · D · Sponsor
• Sen. Bennett, Robert F. [R-UT] · R · Sponsor
• Sen. Bingaman, Jeff [D-NM] · D · Cosponsor
• · sshr00 · Standing

Related records

• related to → Expressing support for the HHT Foundation International's designation of a "National Hereditary Hemorrhagic Telangiectasia (HHT) Month" and supporting efforts to educate the public about HHT.
• related to ← A resolution recognizing June 2009 as the first National Hereditary Hemorrhagic Telangiecstasia (HHT) month, established to increase awareness of HHT, which is a complex genetic blood vessel disorder that affects approximately 70,000 people in the United States.
• related to ← A resolution recognizing June 2010 as National Hereditary Hemorrhagic Telangiecstasia (HHT) month established to increase awareness of HHT, which is a complex genetic blood vessel disorder that affects approximately 70,000 people in the United States.