Question 10306 — maternity health insurance

Summary

Mr. Bastien Marchive questions the Minister of Health, Families, Autonomy and People with Disabilities on the situation of patients suffering from glioblastoma, a particularly aggressive and disabling brain tumor. Glioblastoma is characterized by extremely rapid progression and severe disabilities from the first symptoms. The average life expectancy does not exceed eighteen months, which makes each week crucial in access to care, support and social rights. The law of February 17, 2025, known as the “Charcot law”, made it possible to accelerate and simplify procedures with departmental centers for disabled people (MDPH) for patients suffering from amyotrophic lateral sclerosis (ALS), due to the devastating and irreversible nature of this pathology. However, patients with glioblastoma experience similar courses: rapid loss of autonomy, serious neurological after-effects and immediate need for technical and human aid. The time limits for the various common law administrative procedures then prove to be unsuitable. The MP therefore alerts the Government to the importance of adapting existing systems. In order to ensure that people suffering from glioblastoma have faster and fairer access to the disability compensation benefit (PCH), such as this is already the case for other pathologies with rapid progression. Also, he would like to know if the Government plans to extend the benefit of the provisions provided for by the law of February 17, 2025 to people suffering from glioblastoma, in order to allow them, like amyotrophic lateral sclerosis patients, to benefit from an accelerated investigation procedure and simplified access to aid from the MDPH.

Machine translation from French. The official text remains authoritative.

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