Question 1215 — health

Summary

The 2017-2022 labeling made it possible to improve the structure of the centers and facilitate the referral of patients. For non-vascular Ehler Danlos syndrome, 2 centers have been certified and attached to the OSCAR (Bone-Calcium/Cartilage-Kidney) sector. These new centers are committed to developing a national diagnosis and care protocol, in accordance with the rules of the High Health Authority and based on a scientific consensus, in May 2018, precisely to frame good practices in the diagnostic and therapeutic care of these patients. Furthermore, each sector has developed websites mentioning the associations which collaborate with the teams of these certified reference centers to better guide patients and their loved ones.

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