Question 12181 — end of life and palliative care

Summary

Ms. Marie Tamarelle-Verhaeghe questions the Minister of Solidarity and Health about knowledge of end-of-life conditions. Indeed, the General Inspectorate of Social Affairs, in its report no. 2017-161R on the evolution of the application of the law of February 2, 2016 on the end of life, is concerned that a “veil of ignorance still reigns over the exact circumstances surrounding death and the application of the legislation in force”. This lack of elements made his evaluation work complicated. Although we know the number of deaths in France quite well, knowledge about the place of death, for example, is lacking. How many decisions to stop treatment are decided and implemented? How many terminal sedations are decided and implemented? How many patient requests are made? How many are refused? How many write their advance directives? THE data and studies are largely insufficient. However, good knowledge of data is a condition for the proper application and evaluation of the law of February 2, 2016. The IGAS mission recommends taking several measures (recommendations no. 1, 2, 3, 17 and 19) moving towards better knowledge of the end of life (data collection, traceability of practices, studies and research). She therefore wants to know what next she intends to follow the recommendations of the IGAS in order to better understand end-of-life conditions in France and to be able to evaluate the law of February 2, 2016.

Machine translation from French. The official text remains authoritative.

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