Question 12304 — maternity health insurance

Summary

Mr. Léo Walter draws the attention of the Minister of Health and Prevention to the necessary recognition of fibromyalgia as a long-term condition. Fibromyalgia is a disease in which chronic pain is the main symptom. Other symptoms (fatigue, sleep disturbance, etc.) differ from one patient to another and evolve over time. Affected people describe unbearable pain and disabling in daily actions. This condition affects more than 2 million people in France, 80% of whom are women. On the occasion of the public report from the National Institute of Health and Medical Research (Inserm), the Minister declared on October 8, 2020 that he wanted to “better inform and raise awareness about fibromyalgia, improve the diagnosis and care of patients, promote research projects on pain and fibromyalgia. Since then, various projects have been implemented, as indicated in the answers to written questions no. 159 and no. 37908: the minister indicates that the axes of the Ministry of Health and Prevention in order to improve the health journey and the quality of life of patients with fibromyalgia are the following: “better inform professionals; diagnose earlier; better structure the sector management of chronic pain and strengthen research on chronic pain and fibromyalgia”. But while patient associations welcome this progress, they believe that their main and legitimate request has still not been heard: to recognize this disease as a long-term condition (ALD 30). The MP underlines that fibromyalgia meets the criteria for recognition as ALD 30: daily treatments over a period of more than six months; particularly expensive treatments. Recognition as ALD 30 seems all the more necessary since, profoundly disabling, fibromyalgia renders those affected incapable of working normally, increasing their precariousness. He therefore questions him about the measures he intends to take in order to follow up on this urgent request for recognition of fibromyalgia as a long-term condition. duration.

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