Question 1258 — diseases

Summary

Mr. Christophe Barthès draws the attention of the Minister of Health and Access to Care to Lewy body disease. This disease affects nearly 200,000 people in France, making it the second largest neurodegenerative disease after Alzheimer's disease. Recently identified, it remains difficult to diagnose, with 67% of patients not diagnosed even though they suffer from this disease. There is currently no specific treatment, but certain medications used to treat Alzheimer's disease have positive consequences on cognitive symptoms or the disappearance of hallucinations, but these medications are not reimbursed. In addition, this disease leaves patients and caregivers to their own devices with diagnostic errors sometimes at a very advanced stage of the disease, unsuitable or even dangerous drug treatments, or still have great difficulty finding reception structures and home help professionals trained in its specificities. He asks her what she plans to do to improve the care of patients suffering from Lewy body disease and if she will train professionals, develop suitable structures, reimburse medicines not reimbursed to date, or even recognize this disease as an illness. disabling (ALD).

Machine translation from French. The official text remains authoritative.

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