Question 14163 — diseases

Summary

Ms. Cécile Untermaier draws the attention of the Minister of Solidarity and Health to the funding allocated to research into pediatric cancers. Every year in France, 2,500 children and adolescents are diagnosed with cancer or leukemia, and 500 of them die, often in terrible suffering. However, less than 3% of public funding for cancer research is allocated to cancers pediatrics. The latter are not similar to adult cancers, they require special attention and appropriate treatment for a child. Although the third cancer plan made the fight against pediatric cancers a priority, the resources allocated are unfortunately very insufficient. This is why she asks him to kindly indicate his intentions in this area and in particular if a fourth cancer plan is envisaged when the current one comes to an end in 2019. In addition, many families of children suffering from cancer or serious illnesses find themselves in a difficult financial situation, during the child's illness or after their death. Several associations are calling for the maintenance and revaluation of the daily parental presence allowance (AJPP) during the actual duration of the illness (compared to 310 days currently, including when the illness lasts longer and the parent, sometimes alone, must accompany the child), the extension of public death benefit to the parents of a deceased child. Also, she asks him what response she intends to give to these legitimate requests.

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