Question 16049 — people with disabilities

Summary

Mr. Guillaume Florquin draws the attention of the Minister of Health, Families, Autonomy and People with Disabilities to the persistent difficulties in accessing care encountered by autistic people, particularly when they present severe disorders, in Hauts-de-France as throughout the territory. While access to care constitutes a fundamental right, many families still report refusal explicit or implicit support when requesting a general practitioner, a specialist or a paramedical professional for an autistic person. These difficulties concern in particular access to dental care, ENT consultations, routine medical monitoring, as well as paramedical care essential to the health journey. The situation of Amandine Coupez, mother of Maxence, a young autistic man, relayed recently in the regional press, powerfully illustrates this reality. For many years, she has warned about the obstacles encountered in obtaining appropriate care for her son. His testimony highlights a major difficulty: families can encounter refusals of care for the sole reason that the patient has an autism spectrum disorder, lack of sufficient training, adaptation of consultations or willingness to be accepted into the ordinary health system. These refusals of access to care have particularly serious consequences. They expose the people concerned to forgoing care, to an aggravation of avoidable pathologies, to a loss of medical luck and to a form of institutional mistreatment through lack of care. They also place families and caregivers in a situation of permanent exhaustion, forced to take multiple steps to obtain even basic care. This situation is all the more worrying as it contradicts the objective of inclusion of disabled people stated by the public authorities. Inclusion cannot be effective if autistic people, particularly those with severe disorders, remain excluded, in fact, from the common law health system. It assumes that professionals are trained, that consultations can be adapted and that refusals of care linked to disability are effectively identified, sanctioned and prevented. Beyond the successive announcements and plans devoted to autism and neurodevelopmental disorders, families are waiting for concrete answers. They ask that the announced credits translate into tangible improvements in access to care, training of professionals, the organization of adapted consultations and support for autistic patients in their medical journeys. He therefore asks what concrete measures the Government intends to take in order to guarantee autistic people, particularly in Hauts-de-France, effective, dignified and appropriate access to common law medical and paramedical care and to put an end to the refusals of care which they may still make. the object.

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