Question 17083 — diseases

Summary

Mrs. Lise Magnier draws the attention of the Minister of Solidarity and Health to the daily life of people suffering from Tarlov's disease. This disease results in chronic pain that is disabling for people's daily, emotional, social and professional lives. Many organs, such as the bladder, intestines, genitals, experience dysfunctions that seriously handicap people reached. This disease requires permanent, long-term care which involves a total reorganization of the affected person's daily life. However, this pathology is not recognized as a long-term condition. Many patients are forced to go to the social security court to hope to have their illness recognized as a long-term condition (ALD). Also, she asks him to make sure that Tarlov's disease be recognized as an ALD and treated as such, but also as a rare and orphan disease to integrate the third plan for rare diseases.

Machine translation from French. The official text remains authoritative.

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