Question 17085 — diseases

Summary

Ms. Élisabeth Toutut-Picard draws the attention of the Minister of Solidarity and Health to the recognition of Tarlov's disease. Tarlov cysts are growths that cause serious neurological disorders in affected people. Often asymptomatic, they can however appear following bodily trauma (fall, road accident, etc.), significant effort (lifting a heavy load for example), or a medical or surgical procedure (lumbar puncture, epidural). This disease is often misdiagnosed because the medical profession lacks expertise in this pathology. Although the symptoms painfully affect the actions of daily life, patients are often refused their requests for long-term illness. She wishes to know whether the Government plans to recognize Tarlov's disease under the long-term conditions and as rare and orphan diseases. She would also like to know the measures taken to better inform the medical profession and the means committed to financing research on this pathology.

Machine translation from French. The official text remains authoritative.

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