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17343

Question 17343 — diseases

openFrance· National Assembly· FR

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Summary

Mr. Joël Aviragnet draws the attention of the Minister of Solidarity and Health to the treatment of Tarlov's disease, a so-called rare and orphan disease. About 3,000 people have meningeal cyst syndrome. There are different ways to treat cysts. The best care is at the Pasteur hospital in Colmar. In fact, two specialized neurosurgeons intervene to relieve patients. He would be It is desirable that this establishment be recognized as a “reference center” and that the disease is also recognized. This is an expectation of all affected people, in order to be able to obtain effective care. Also, he asks him the Government's intentions on this issue.

Machine translation from French. The official text remains authoritative.

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