Question 17350 — diseases

Summary

Mr. Fabrice Brun draws the attention of the Minister of Solidarity and Health to the treatment difficulties encountered by patients suffering from Tarlov cyst disease. In the majority of cases, these “periradicular cysts” are asymptomatic but they can nevertheless develop gradually, causing very severe pain that is difficult to relieve and leading to disability incompatible with the condition. pursuit of a professional activity. The Orphanet database indicates that “the prevalence of Tarlov disease remains unknown and its annual incidence is estimated at approximately 0.05%”. Consequently, as it is not included on the list of thirty long-term conditions (ALD), patients cannot benefit from a disability pension, except in the case of recognition as an ALD known as off-list for the most severe forms and including the treatment will be long and expensive. He therefore wishes to know the measures that the Government plans to take to ensure better recognition and care for people suffering from Tarlov cyst disease.

Machine translation from French. The official text remains authoritative.

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