Question 17354 — diseases

Summary

Mr. Joël Giraud alerts the Minister of Solidarity and Health to the situation of people suffering from rare cancers of the peritoneum and previously treated at the reference center of the Lariboisière hospital. Indeed, the Association for the Fight against Rare Peritoneal Diseases (AMARAPE) alerted it following the announcement of the closure of this center, on October 31, 2018, for economic reasons linked to a reduction in the number of beds. in the establishment. For almost 10 years, the structuring of the national network for the management of rare peritoneal tumors (RENAPE), of which this reference center is a part, and the network dynamics which accompanies it have contributed to guaranteeing each patient a local offer in access to medical expertise whatever their place of treatment, while constituting major assets in terms of research, confirming the international leadership of French teams in the field of innovation in the management of primary and secondary peritoneal carcinomatosis. According to AMARAPE, the elimination of this service would weaken the entire organization of the network with serious consequences for all patients in terms of diagnosis, management, care and follow-up. Furthermore, this deletion would undermine the logic of care of the various cancer plans while this center has met all public health objectives for almost ten years. Knowing its commitment to guaranteeing access to care for all, he would like to know the measures it intends to take to ensure continuity of care for people suffering from rare peritoneal cancers.

Machine translation from French. The official text remains authoritative.

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