Question 19072 — diseases

Summary

Mr. Christophe Arend draws the attention of the Minister of Solidarity and Health to the situation of people suffering from interstitial cystitis, also more commonly called “painful bladder syndrome”. This chronic disease should not be confused with a simple urinary infection which can be added to this. Interstitial cystitis is extremely painful and is a real constraint on a daily basis too. both physical and psychological. Today, there is no effective treatment, only treatments to alleviate patients' pain (anti-inflammatories, antispasmodics, even antidepressants). However, in France, this disease affects nearly 10,000 people. In addition to the lack of treatment, interstitial cystitis is not recognized among the 30 CPAM diseases as a long-term condition (ALD). THE patients therefore do not have recognition of their disability, nor adequate medical and social care. Certainly, the law to modernize our health system of 2016 contributed to strengthening the missions of primary care general practitioners to ensure the care of patients in specialized structures. In addition, the Ministry of Solidarity and Health announced that “recommendations relating to the standard process for the care of patients suffering from chronic pain are being developed by the High Health Authority for optimal collaboration between city and structures. Given the urgency of the situation for these patients, he asks about the progress of the recommendations of the High Health Authority and whether the Government intends to take rapid measures both in terms of research to treat this disease, for its recognition, as well as for the development of aid to people affected by the establishment of a card giving access to sanitary facilities, for example.

Machine translation from French. The official text remains authoritative.

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