Question 20546 — diseases

Summary

Mr. Brahim Hammouche draws the attention of the Minister of Solidarity and Health to the need to raise awareness among the general public about the early diagnosis of rare hemorrhagic diseases and entry into medical care. During the 29th World Hemophilia Day on April 17, 2019, the French Association of Hemophiliacs (AFH) clarified the issues related to this early detection and insisted on the importance of supporting initiatives aimed at improving the lives of all those suffering from a bleeding disorder in France. Hemophilia is a serious and rare genetic disease which affects nearly 6,000 people in France. Thus, taking into account the most severe forms of Willebrand disease, very similar to hemophilia, and other coagulation diseases, the number of people affected by a process of coagulation in France is estimated at 15,000. coagulation faulty. Although treatments have evolved considerably over the last decades, which has increased the expectancy and quality of life of patients, they still have many limitations. Today, new therapeutic strategies and in particular gene therapy make it possible to consider the treatment or even cure of the disease more favorably. Unfortunately, this research does not not progressing fast enough. In addition, the AFH clarified that for many rare constitutional hemorrhagic diseases, screening and early diagnosis were priority issues. Therefore, he asks him to please inform him of the government health policies put in place to fight against these diseases.

Machine translation from French. The official text remains authoritative.

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