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22882
Question 22882 — diseases
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Summary
Mr. Rémi Delatte draws the attention of the Minister of Solidarity and Health to people suffering from Tarlov's disease. This pathology causing disabling chronic pain and a source of major disruption in daily and professional life is currently unknown to many health professionals. This pathology is included in the directory of rare diseases of the Orphanet group and recognized in the code of WHO diseases. However, despite these scientific recognitions, no specific means are allocated to organize its management, in particular through the appointment of a national expert center. He would like to know the means that will be mobilized to support patients suffering from this pathology and offer them appropriate care.
Machine translation from French. The official text remains authoritative.
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- Official source: https://www.assemblee-nationale.fr/dyn/15/questions/QANR5L15QE22882
- Open data entity: https://www.assemblee-nationale.fr/dyn/opendata/QANR5L15QE22882