Question 26157 — diseases

Summary

Mr. Jean-Luc Lagleize draws the attention of the Minister of Solidarity and Health to the Neurodegenerative Disease Plan (PMND) 2014-2019, with a budget of 470 million euros over five years for the concrete implementation of 96 measures dedicated to the fight against three main pathologies (Alzheimer's, Parkinson's and multiple sclerosis). Today, 1.2 million people are affected by Alzheimer's disease or a related disease in France. With 225,000 new cases each year, Alzheimer's disease is the most common neurodegenerative disease and will affect more than 1.8 million people by 2050. We can no longer count the number of caregivers who, every day, support these patients. In this critical context, those involved in supporting people suffering from Alzheimer's disease or a related illness are concerned about the capacity of the system of health and social protection to support these patients and their caregivers. Thus, the financing of the personalized autonomy allowance (APA) seems disconnected from the daily needs of patients and their caregivers as well as the progression of the illness, and the costs of providing care at home or in establishments are, for their part, too high for most families. If the price of a stay in an accommodation establishment for people dependent elderly people (EHPAD) varies from one establishment to another, all establishments are subject to the same pricing rule, for an average out-of-pocket cost for residents of 1,758 euros per month before taking into account social assistance for accommodation (ASH). Also, despite 100% coverage of the illness by social security as a long-term condition (ALD 15), the majority of costs borne by families do not actually reality subject to no reimbursement by social security. Only health sector expenses are reimbursed. Thus, he questions the Government's intentions to implement an official evaluation of the 2014-2019 Neurodegenerative Disease Plan (PMND) and to put in place a new Neurodegenerative Disease Plan (PMND) adapted to financial, human, social and territorial issues.

Machine translation from French. The official text remains authoritative.

Timeline

No timeline events have been ingested for this record yet.

Votes

No vote records are attached yet.

Versions

No version snapshots stored. Document URLs remain at the source.

Documents

No documents linked.

Sponsors

No sponsors or actors listed by the source.

Related records

No cross-record relationships stored yet.