Question 2854 — diseases

Summary

Mrs. Barbara Pompili draws the attention of the Minister of Solidarity and Health to research against interstitial cystitis. This bladder disease is often very disabling due to the severe pain it can cause. Around 10,000 people are affected by it in France. The causes of this pathology remain unknown to this day. Diagnosis is often only made by elimination. Consequently, the Medical treatments are often ineffective and patients find themselves in medical wandering. It therefore appears necessary, to treat this disease, to stimulate scientific research, particularly into the causes of the pathology. To facilitate diagnosis, a precise diagnostic protocol could be defined, in particular by detecting the presence of a substance called "antiproliferative factor", present only in patients with this disease. Such a protocol could indeed prevent patients from undergoing invasive and painful examinations. Awareness among doctors, both generalists and specialists, sometimes remains low. The consequences of the disease must also call for a response from public authorities, as they can have a serious impact on daily life. She therefore wishes to know if her ministry can consider such measures or other levers of action in favor of research on this disease and support for patients.

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