Question 3053 — social security

Summary

Ms. Nathalie Colin-Oesterlé draws the attention of the Minister to the Minister of Labor, Health, Solidarity and Families, responsible for health and access to care, on the conditions of access to daily allowances for people suffering from cystic fibrosis, recognized as a long-term condition (ALD) by Decree No. 2011-77 of January 19, 2011. In application of article L. 313-1 of the social security code, Patients must have worked at least 600 hours during the 12 calendar months or 365 days preceding work stoppage or have contributed on the basis of remuneration fixed with reference to the amount of the hourly minimum wage over this same period to qualify for daily allowances. However, these conditions appear profoundly unsuitable for the realities experienced by people with cystic fibrosis. This chronic pathology requires heavy daily care, frequent hospitalizations and disabling treatments. These medical constraints make it difficult, if not impossible, to maintain continuous professional activity over a long period. Due to the unpredictable course of the disease and the extreme fatigue it generates, these patients may experience discontinuous career paths, marked by frequent interruptions of activity. Many can neither reach the threshold of 600 hours of work required nor demonstrate sufficient contributions over the 12 months preceding the date of interruption, despite significant efforts to remain in employment. This situation creates a major social injustice, going against the principle of social protection and the values ​​of national solidarity. Patients suffering from cystic fibrosis are thus doubly penalized : on the one hand, by their state of health and, on the other hand, by legislation unsuitable for the chronicity and seriousness of their illness. She therefore asks what measures the Government plans to take to adapt the conditions of access to daily allowances to the specificities of cystic fibrosis, in particular by removing or relaxing the condition of one continuous year of prior contribution, in order to guarantee protection. fairer and more adapted social system for these patients.

Machine translation from French. The official text remains authoritative.

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