Question 33162 — diseases

Summary

Mr. Pierre Cabaré draws the attention of the Minister of Solidarity and Health to pediatric cancer. The recent death of Constance, an 11-year-old girl who died of cancer, shook the conscience of Toulouse in 2017. The fight of “Constance the little astronaut warrior” moved and raised a wave of solidarity. She now embodies the fight of some 2,500 children and adolescents affected each year in France by a pediatric cancer. Five hundred of them died. This situation raises many questions. In addition to the savings requested from hospitals and their consequences (which do not stop at the doors of pediatric oncology departments), it is the weakness, or even the absence of funding for research projects and the resources granted to researchers on pediatric cancers which is of concern. If the multi-year research law establishes 25 billion euros over the next 10 years for research as a whole, only 3% of the funds allocated each year to cancer research are devoted to them. However, scientists constantly repeat that adult and childhood cancers have little in common, and that research and treatments must be specifically designed for children. The numerous donations collected by associations are not enough to make up for the lack of investment. Beyond that, it is also the question of support from parents, and the financial difficulties that may result from this, which must be taken into account. Parents with a child suffering from a serious illness can sometimes count on the understanding of their employer and the solidarity of their colleagues who can give them days of reduced working hours. (RTT). But what about when that’s not the case? What happens when the illness lasts, or when a relapse occurs? What security do we offer to an employee who must be absent for a long period to care for their child with cancer? Individual solidarity cannot replace the State's resources in matters of pediatric health. He asks him if a support system for parents, financial and material, was provided for in the Social Security financing bill for 2021, thus allowing families who experience the ordeal that is pediatric cancer to be able to obtain days of work reduction time supported by the State. He wants to know if he is in favor of this option.

Machine translation from French. The official text remains authoritative.

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