Question 44229 — diseases

Summary

Ms. Isabelle Santiago draws the attention of the Minister of Solidarity and Health to the Government's action plan relating to endometriosis. This action plan is absolutely crucial; Today it is estimated that one in ten women suffer from endometriosis, or more than three million people in France. These figures, although alarming, were not enough to break the taboo for a long time. The heavy silence of the medical, media and policies around this condition - whose symptoms are nevertheless extremely disabling - have long been complicit in the suffering of women. Thursday January 13, 2022, the deputies decided to take a big step forward, by unanimously adopting the proposed resolution carried by Ms. Clémentine Autain, relating to the inclusion on the list of “exempt” long-term conditions (ALD 30) of endometriosis. Place endometriosis on this list - which gives rights to 100% coverage of healthcare expenses incurred, to sick leave without waiting periods and to the adjustment of working time for patients - appeared necessary to all parliamentarians. Currently, obtaining such support is only possible on a case-by-case basis in the context of “exempt” conditions known as off-list (ALD 31) and very few women in benefit (4,500 in 2018). This system is denounced by associations as being a source of territorial inequalities and based on opaque functioning. Indeed, the criteria for recognizing the “exempting” nature of the disease remain vague and often depend on the goodwill of the practitioner responsible for the diagnosis. However, this resolution passed a few days ago has no binding value. The hopes of women are therefore based on the Government's action plan on which the interministerial committee chaired by MEP and gynecologist Chrysoula Zacharopoulou is working. However, following the announcements of January 11, 2022 by the President of the Republic making public the national strategy to combat endometriosis, it appears that the upcoming text will be much less ambitious than that voted in the National Assembly. In fact, this one favors harmonization of access to ALD 31 on the national territory, rather than recognition of ALD 30. However, if it is indeed necessary, as the President of the Republic said, "to better understand this disease and its causes in order to find therapeutic treatments", the question of recognition of the "exempting" nature of endometriosis is essential for the women affected by it, particularly the most vulnerable of them. We must therefore not be satisfied with announcement effects like this but also invest significant resources and set an ambitious timetable in the fight against endometriosis. She asks him if he can commit to recognizing endometriosis as an “exempting” long-term condition and thus unlock the necessary means to help these suffering people.

Machine translation from French. The official text remains authoritative.

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