Question 5644 — end of life and palliative care

Summary

Mr. Francis Vercamer questions the Minister of Solidarity and Health about pediatric palliative care beds. The objective of palliative care is to preserve the quality of life of patients and families in the face of an illness that has no hope of cure. This care is implemented from the moment when treatments no longer make it possible to stop the progression of the disease and is not reserved only for the last moments of the patient's life. patient. Currently, pediatric palliative care is provided at home or within specialized pediatric services that have supported the child throughout their illness: neurology, intensive care, cardiology, obstetrics, neonatology. However, certain associations of parents of sick children are calling for the possibility of "demedicalizing" the end of life of children and the creation of pediatric palliative care beds at the within health establishments. This involves being able to receive family, siblings or friends under less strict conditions than those that may be required in specialized care services. Ensuring the presence of parents alongside their child, day and night, eating meals on site, having access to a bathroom, are all shared moments that must be facilitated. Likewise, an identification of care beds pediatric palliative care must allow health establishments to access a valued palliative care price, subject to implementing resources dedicated to the implementation of a palliative approach. He therefore asks him to please indicate what measures the Government intends to take to create pediatric palliative care beds in health establishments.

Machine translation from French. The official text remains authoritative.

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