Question 7505 — diseases

Summary

Mrs. Laurence Gayte alerts the Minister of Solidarity and Health about the cancellation of clinical trials concerning the fight against cystic fibrosis. Clinical trials planned in France of a drug against cystic fibrosis have been canceled by the American laboratory Vertex Pharmaceuticals. These cancellations will have the consequence of delaying, if the results are conclusive, the making of these drugs available to French women and French people suffering from this disease. These cancellations were due, according to the American management of Vertex Pharmaceuticals, to the impossibility of reaching an agreement with the State on the price of a previous treatment, namely orkmabi. For the thousands of patients who placed real hopes in these tests, it is a real hostage-taking. Thus, she wishes to alert him to the importance of finding a solution to allow victims of this disease to benefit from the latest medical advances.

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