Question 820 — people with disabilities

Summary

Regarding the care of autism in France, supporting people with autism and their families is a strong commitment from the government. Identification and equal access to diagnosis, support and care must be guaranteed to everyone, throughout the territory. This is an issue of national cohesion and the mobilization of all stakeholders. The President of the Republic launched on July 6, 2017 at the Elysée consultation with a view to developing the 4th autism plan with all the associations concerned. Since then, throughout the territory, discussions have been carried out with administrations (regional health agencies, rectorates, regional directorates of businesses, competition, consumption, work and employment), local authorities (departmental councils) and civil society (associations, individuals autistic). This work must feed into national working groups which will be set up at the start of the school year: the aim is to draw inspiration from innovative practices, proven at the local level, and to organize the conditions for their spread across the entire territory. This work aims to build ambitious actions which will be taken up by the plan to better identify, better screen, better diagnose, better support people with autism and promote their inclusion. This 4th autism plan will aim to improve and amplify the effects of the 3rd autism plan (2013-2017) which benefited from funding of €205.5 million, mainly devoted to the medico-social sector, i.e. 10% more than the 2nd plan. In particular, it made it possible to increase by 33% in 4 years the number of medico-social places intended for autistic people, children and adults, going from 12,600 to 16,800 places. The 3rd plan also enabled innovation in the education of children with autism, through the creation of nursery education units (UEM). At the start of the 2017 school year, 112 teaching units will be opened, thus exceeding the objective of creating 110 EMUs. Furthermore, regarding access to diagnosis for children and adults and concrete support for parents, the role of autism resource centers is essential. This is why the decree of May 5, 2017 relating to the minimum technical conditions for the organization and operation of autism resource centers harmonized the operating rules. Much remains to be done. The 4th autism plan will be structured around five axes: - Schooling and access to higher education, professional training for autistic people to enable all children affected by autism spectrum disorders to access schooling, to objectivize the support needs at the different stages of the school career, to improve coordination between national education and the medico-social sector; - Social inclusion and citizenship of autistic adults: to improve the identification and diagnosis of autistic adults, promote their autonomy, prevent precariousness, identify vulnerabilities particular and facilitate access to culture and sport; - Research, innovation and university training to strengthen knowledge on the signs, causes and factors favoring it as well as possible prevention; - The family, the fluidity of pathways and access to care: to support families (information, training, guidance, therapeutic education), take the family into account as an expert, offer diversity of respite solutions for loved ones. The quality of interventions, the training of professionals and support for change: to improve the training of all present and future professionals who will experience autism, continue efforts to adopt recommendations for good professional practices. This 4th autism plan must of course draw the consequences of the evaluation of the 3rd plan carried out by the General Inspectorate of Social Affairs, the work of the International Scientific Commission meeting in Paris last April and the report by Josef Schovanec published on March 16, 2017 on the “professional future of autistic people”, but above all it will have to start from the realities on the ground. Furthermore, a mission to evaluate public policies on autism is carried out by the 6th chamber of the Court of Auditors at the request of the National Assembly; the delivery of this work will take place at the end of 2017 and will be able to feed into the work of the 4th plan. Generally speaking, the 4th autism plan must allow progress for all people with disabilities; certain provisions could be generalized and extended to people with neurodevelopmental disorders.

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