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United States · Bill · HR

H.R. 1230 (111th)

To amend the Public Health Service Act to provide for research on acquired bone marrow failure diseases, minority-focused programs on such diseases, and the development of best practices for diagnosis of and care for individuals with such diseases.

referredUnited States· United States Congress· EN

Introduced

26 February 2009

Last action

15 November 2010 · Introduced

Status

Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

Sponsors

Rep. Matsui, Doris O. [D-CA-7], Rep. Bishop, Sanford D. [D-GA-2], Rep. Murtha, John P. [D-PA-12], Rep. McDermott, Jim [D-WA-7], Rep. Emerson, Jo Ann [R-MO-8], Rep. Green, Gene [D-TX-29], Rep. Abercrombie, Neil [D-HI-1], Rep. Schwartz, Allyson Y. [D-PA-13], Rep. Conyers, John, Jr. [D-MI-13], Sen. Hirono, Mazie K. [D-HI], Del. Bordallo, Madeleine Z. [D-GU-At Large], Rep. Lewis, John [D-GA-5], Rep. Frank, Barney [D-MA-4], Rep. Wolf, Frank R. [R-VA-10], Rep. King, Peter T. [R-NY-2], Sen. Van Hollen, Chris [D-MD], Rep. McGovern, James P. [D-MA-2], Rep. DeGette, Diana [D-CO-1], Rep. Arcuri, Michael A. [D-NY-24], Rep. Eshoo, Anna G. [D-CA-18], Rep. Honda, Michael M. [D-CA-15], Rep. Platts, Todd Russell [R-PA-19], Rep. Burgess, Michael C. [R-TX-26], Rep. Gonzalez, Charles A. [D-TX-20], Rep. Bishop, Timothy H. [D-NY-1], Rep. Sestak, Joe [D-PA-7], Rep. Altmire, Jason [D-PA-4], Sen. Baldwin, Tammy [D-WI], Sen. Murphy, Christopher [D-CT], Rep. Barrow, John [D-GA-12], Rep. Engel, Eliot L. [D-NY-16], Rep. Stark, Fortney Pete [D-CA-13], Rep. Hinchey, Maurice D. [D-NY-22], Rep. Miller, Candice S. [R-MI-10], Rep. Braley, Bruce L. [D-IA-1], Rep. Schakowsky, Janice D. [D-IL-9], Rep. McCotter, Thaddeus G. [R-MI-11], Rep. Butterfield, G. K. [D-NC-1], Rep. Snyder, Vic [D-AR-2], Rep. Clay, Wm. Lacy [D-MO-1], Rep. Ellsworth, Brad [D-IN-8], Rep. Carnahan, Russ [D-MO-3], Rep. Cleaver, Emanuel [D-MO-5], Rep. Bono, Mary [R-CA-44], Rep. Maffei, Daniel B. [D-NY-25], Rep. Latham, Tom [R-IA-3], Rep. Loebsack, David [D-IA-2], Rep. Cohen, Steve [D-TN-9]

Subjects

Healthcare, Environment

Source updated

21 April 2025

Healthcare · Environment

Summary

Bone Marrow Failure Disease Research and Treatment Act of 2009 - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) develop a system to collect data on acquired bone marrow failure diseases; (2) establish the National Acquired Bone Marrow Failure Disease Registry; and (3) establish the Advisory Committee on Acquired Bone Marrow Failure Diseases to provide recommendations to the Secretary on the Registry. Allows the Secretary, acting through the Director, to award grants to, and enter to contracts and cooperative agreements with, public or private nonprofit entities for the management of the Registry. Requires the Secretary, acting through the Administrator of the Agency for Toxic Substances and Disease Registry, to conduct pilot studies to determine which environmental factors may cause acquired bone marrow failure diseases. Requires the Secretary, acting through the Deputy Assistant Secretary for Minority Health, to: (1) establish outreach and information programs targeted to minority populations affected by such diseases; (2) undertake a coordinated outreach effort to connect Hispanic, Asian American, and Pacific Islander communities with comprehensive services focused on treatment of, and information about, such diseases; and (3) awards grants to, or enter into cooperative agreements with, entities to perform research on such diseases. Requires the Secretary, acting through the Director of the Agency for Healthcare Research and Quality (AHRQ), to award grants to entities to improve diagnostic practices and quality of care with respect to patients with such diseases.

This text is taken from the official record. PoliticalRepo does not editorialize.

Timeline

  1. 26 February 2009

    Introduced

    Referred to the House Committee on Energy and Commerce.

    Source: IntroReferral

  2. 26 February 2009

    Introduced

    Introduced in House

    Source: IntroReferral

  3. 26 February 2009

    Introduced

    Introduced in House

    Source: IntroReferral

  4. 6 March 2009

    Referred

    Referred to the Subcommittee on Health.

    Source: Committee

  5. 15 September 2010

    Committee

    Subcommittee Hearings Held.

    Source: Committee

  6. 16 September 2010

    Committee

    Forwarded by Subcommittee to Full Committee (Amended) by Voice Vote .

    Source: Committee

  7. 16 September 2010

    Committee

    Subcommittee Consideration and Mark-up Session Held.

    Source: Committee

  8. 23 September 2010

    Reported

    Ordered to be Reported (Amended) by Voice Vote.

    Source: Committee

  9. 23 September 2010

    Committee

    Committee Consideration and Mark-up Session Held.

    Source: Committee

  10. 28 September 2010

    Reported

    Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 111-637.

    Source: Committee

  11. 28 September 2010

    Floor

    At the conclusion of debate, the chair put the question on the motion to suspend the rules. Mr. Burgess objected to the vote on the grounds that a quorum was not present. Further proceedings on the motion were postponed. The point of no quorum was withdrawn.

    Source: Floor

  12. 28 September 2010

    Floor

    DEBATE - The House proceeded with forty minutes of debate on H.R. 1230.

    Source: Floor

  13. 28 September 2010

    Floor

    Considered under suspension of the rules. (consideration: CR H7193-7194)

    Source: Floor

  14. 28 September 2010

    Floor

    Mr. Pallone moved to suspend the rules and pass the bill, as amended.

    Source: Floor

  15. 28 September 2010

    Calendars

    Placed on the Union Calendar, Calendar No. 377.

    Source: Calendars

  16. 28 September 2010

    Reported

    Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 111-637.

    Source: Committee

  17. 30 September 2010

    Passed

    The title of the measure was amended. Agreed to without objection.

    Source: Floor

  18. 30 September 2010

    Passed

    Motion to reconsider laid on the table Agreed to without objection.

    Source: Floor

  19. 30 September 2010

    Passed

    On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote. (text: CR 9/28/2010 H7193)

    Source: Floor

  20. 30 September 2010

    Passed

    Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote.(text: CR 9/28/2010 H7193)

    Source: Floor

  21. 30 September 2010

    Floor

    Considered as unfinished business. (consideration: CR H7380)

    Source: Floor

  22. 15 November 2010

    Introduced

    Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

    Source: IntroReferral

Votes

No vote records are attached yet.

Versions

Documents

10 official files

Referred in Senate (text)

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  • Referred in Senate (text)

    Referred in Senate · EN · 15 November 2010

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  • Referred in Senate (PDF)

    Referred in Senate · EN · 15 November 2010

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  • Engrossed in House (text)

    Engrossed in House · EN · 1 October 2010

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  • Engrossed in House (PDF)

    Engrossed in House · EN · 1 October 2010

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  • Passed House amended

    summary · EN · 30 September 2010

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  • Reported in House (text)

    Reported in House · EN · 28 September 2010

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  • Reported in House (PDF)

    Reported in House · EN · 28 September 2010

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  • Introduced in House (text)

    Introduced in House · EN · 26 February 2009

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  • Introduced in House (PDF)

    Introduced in House · EN · 26 February 2009

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  • Introduced in House

    summary · EN · 26 February 2009

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Sponsors

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Sources

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