Question 11082 — diseases

Summary

Mr. Guy Bricout draws the attention of the Minister of Solidarity and Health to the financing of research into cancers and fatal diseases in children. If we take the example of cancer, it kills 500 children in France and 6,000 in Europe each year, the equivalent of 240 school classes. In France, despite the tripling of the number of children included in clinical trials between 2007 and 2015 (853 children in 2007, 2,443 in 2015 according to the National Cancer Institute), the number of child deaths from this disease has not declined over this period. Even if it allowed progress between the 50s and 80s, we clearly cannot limit ourselves to clinical research on diseases, some specific to children. A very informative benchmark was carried out by American associations, in collaboration with a French association member of the “Growing up without cancer” federation. In recent years, Barack Obama's government has intervened on regulations, notably by passing the Creating Hope act which rewards drug manufacturers who market treatments for cancers and fatal childhood illnesses. But he was able to see that incentive measures alone, similar to European pediatric regulations, were not enough. This is why the President Obama signed the Gabriella Miller Kids First Research Act in 2014. Continuing on, the Republicans worked on the Kids First Research Act 2 which guarantees earmarked funding, in addition to existing resources, greater than France per capita, for childhood cancers and fatal diseases. This intervention of the public force, engraved in the law, promotes stability and allows the emergence of projects ambitious. In France, most pediatric research is financed by associations, often created by parents of deceased children (like “Le smile de Lucie” and many others). Unfortunately, they cannot provide all the necessary means. Many projects on childhood cancers and fatal diseases exist but there is a lack of money. It would be possible for him to introduce him to numerous researchers who are organizing themselves, who come together but who spend a “crazy time” responding to calls for projects in vain. Many are tempted to give up on pediatric research or go abroad. Or change jobs. A parliamentary report demonstrated that there was a lack of resources for research into cancers and other fatal childhood illnesses (30 to 40 million euros per year would be needed in addition to existing resources) but also, in matters of assistance to families. Should we wait for the United States to “do the job”? He would like to know if she is ready to support a bill aimed at creating dedicated funding for public research into childhood cancers and fatal diseases, in addition to the support already provided for incentive measures.

Machine translation from French. The official text remains authoritative.

Timeline

No timeline events have been ingested for this record yet.

Votes

No vote records are attached yet.

Versions

No version snapshots stored. Document URLs remain at the source.

Documents

No documents linked.

Sponsors

No sponsors or actors listed by the source.

Related records

No cross-record relationships stored yet.